Chronicles of Life with Multiple Sclerosis
What happens when you win a crazy/insomnia/pain induced post contest!? THIS! The turtle winds up and does a crazy dance.
Don’t worry, I made sure to make a little #1 plaque with your name on it for the terra-cotta pot not-that-kind-of-chronic !! Its coming your way!
you’re probably regretting this now aren’t you.. I’ll try and throw something less crazy in that package hee.
Nothing says sexy like pink legwarmers and a hospital gown! you’re jealous.
BP2 - emotional support stuffed sea turtle (though his first incarnation is in my closet) was named to remind us of that awful oil spill that harmed so many sea turtles and so that I could respond to the MRI techs when the asked me his name with “Its BP. you know. like the oil company”. I like to cause trouble.
in any case, BP2 didn’t get pre registered for our MRI like I did so we had to stop at admitting before heading to radiology. Once we got there, however, we had a semi painful (don’t cross your legs during an MRI if they hurt.. you have to keep them that way for at least an hour) but decent MRI. Turns out BP is still filled with cotton, with no change. I may have a new lesion that looks like a lighting bolt… We’ll see how the neuro deals with that. (yeah I have a DOCS reader on my computer and all my MRIs)
More importantly? even though the tech wouldn’t get a pic of me on the table wearing them, nothing says sexy like hospital gown and legwarmers. I was a maniac in that MRI machine.
some days Zoya and I are really on the same page… just lift your head and look around if you’re concerned about whats happening… otherwise its not worth getting out of bed.
Though I’ll say that that face is probably the one thing that forces me to get up even when the pain is the worst… cause having to pee seems less important in relation to that wittle face waiting for her nom noms.
Still getting mixed messages from the Marine mammal and sea turtle rescue center regarding an internship. What saddens me most is they keep saying I’m a perfect candidate.. except for my physical disability. If I could just shorten the hours.. I swear I’d be happy to spend 4 days recovering (or more heh) for the 2 half days instead of one long one spent helping rehab sea turtles. Damn you multiple sclerosis and legal logistics of volunteerism and disabled people. blerg.
Ok. come you guys. Tell me my bruise doesn’t look like a turtle!?! you know it does!
since no one seemed to agree on twitter I went ahead and drew in some legs to make my point.. see?
I think this is better than seeing the virgin mary in a piece of toast.. cause I don’t have to decide if I should eat it..
yay torties!!! I am the same way. Love cats and dogs but am really allergic. I have a tortoise named Zoya and she’s my hero (actually she’s my emotional support animal but thats a story for another time). Animals do wonders when things are crappy on the health front don’t they? Pacha is adorable!! yay reptile lovers!
My allergies only allow me to keep reptiles or fish as pets. I am actually TERRIFIED of fish (every time someone takes a picture of fish, with fish, that have fish in them and then POSTS them on tumblr I look away u.u
I do have a crazy love for reptiles though =) and this here is the most amazing one ever. My redfooted tortoise, Pacha.
So my veins really suck. During my MRI this morning it took 3 attempts to find one (including one of those fantastic moments where the nurse sticks the needle in and just wiggles it around until she either finds something or gives up and moves to another place). So that wasn’t the most fun, especially combined with the MRI.
An hour or so after that I had my appointment with my neurologist. The good news is, I’m JC negative! wooo! So I started the paperwork to switch to tysabri. Being JC negative for now it seems like low enough risk that despite my special luck (hah) the benefits outweigh the risks.
The bad news, on the other hand, is my MRI showed new disease activity. boo. I figured that was the case since I’ve been having so much pain, numbness, and am falling down a lot. So? I’m on 3 days of IV solu medrol! FUN!!! They went ahead and gave me the first one since I was already there but I come back tomorrow and Wed for the rest. Hopefully this will help (and not make me as puffy, hungry, and moody as it normally does.. yeah. right). I’ve already reached that point where I’m reasonably sure I haven’t blinked in 10 minutes. Awesome!
The more important part of the bad news is that the nurse at the infusion center had just as much trouble (more really) as the MRI tech. 3 needles and 5 attempts to get it in. she got so frustrated after thinking she got the 4th try in that when she saw it bubble up with saline she just left it there. haha so for a good 45 minutes I considered if I could use that extra one for something fun like subcutaneous coffee or fast acting gin and tonic. haha. opted out of that thought eventually. Thankfully, as you can see, BP was there to make sure the rest of the process went right. Always helpful that stuffed sea turtle.
Meet BP. He’s my stuffed sea turtle & MRI buddy. He is up and about in preparation for my MRI. Having him with me helps me have something to focus on, reminds me of zoya, and allows me the opportunity to evoke strange looks from the hospital staff when I tell them his name is BP (which is fun for me… I’m like that)