Nothing says sexy like pink legwarmers and a hospital gown! you’re jealous. 

BP2 - emotional support stuffed sea turtle (though his first incarnation is in my closet) was named to remind us of that awful oil spill that harmed so many sea turtles and so that I could respond to the MRI techs when the asked me his name with “Its BP. you know. like the oil company”. I like to cause trouble. 

in any case, BP2 didn’t get pre registered for our MRI like I did so we had to stop at admitting before heading to radiology.  Once we got there, however, we had a semi painful (don’t cross your legs during an MRI if they hurt.. you have to keep them that way for at least an hour) but decent MRI. Turns out BP is still filled with cotton, with no change. I may have a new lesion that looks like a lighting bolt… We’ll see how the neuro deals with that. (yeah I have a DOCS reader on my computer and all my MRIs)

More importantly? even though the tech wouldn’t get a pic of me on the table wearing them, nothing says sexy like hospital gown and legwarmers. I was a maniac in that MRI machine. 

28 February 2013 ·

Zoya needs a new lamp! by Tort Time - GoFundMe

positivethinkingforlosers:

Hey all, I know we are much less in need than a lot of the turtles and tortoises out there but Zoya’s uvb/a light burned out and the lamp itself isn’t working right! she really needs a new one! Things are sorta rough on the home front and Mom can’t afford to buy a new one at the moment :( I know we’re all having a rough time these days but if you have an extra dollar we’d really appreciate it! Visit the link and help if you can! just know we love you either way <3 and shelled snuggles! 

15 August 2012 ·

some days Zoya and I are really on the same page&#8230; just lift your head and look around if you&#8217;re concerned about whats happening&#8230; otherwise its not worth getting out of bed. 
Though I&#8217;ll say that that face is probably the one thing that forces me to get up even when the pain is the worst&#8230; cause having to pee seems less important in relation to that wittle face waiting for her nom noms. 

some days Zoya and I are really on the same page… just lift your head and look around if you’re concerned about whats happening… otherwise its not worth getting out of bed. 

Though I’ll say that that face is probably the one thing that forces me to get up even when the pain is the worst… cause having to pee seems less important in relation to that wittle face waiting for her nom noms. 

4 May 2012 ·

so I complain about a lot…

but my first 2012 insomnia sunrise is beautiful and my amazing tortoise Zoya is awake and blinking at me.. what more could I want!?! Well, good friends ending up crashing on my couch.. not ashamed to say that I’m so happy to still be able to be helpful and to have them in my home. These peeps are my REAL family.. biology be damned. 

so far I give 2012 about a 8.5 ;-)

1 January 2012 ·

Ain’t no party like a chronically-something party…

I know you’re all wondering what this crazy girl is doing on the last friday night of 2011. This shitty year is about to end so I should spend the last full night of it in a way that sums up the whole year, right? right.

Well, I don’t want you all to be too jealous but… I’m so on it.  Currently I’m sitting on my couch watching SNL’s best of Jimmy Fallon (currently airing on VH1) in the shirt I’d been wearing all day, my pj pants, a giant sweatshirt, some bright pink leg warmers, with my hair all over the place from being half up all day and then taken down without further brushing. 

Feel free to take a moment to yourself if that sexy image was too much for you.  

I’ve worked on 4 separate crochet projects, 2 of which I started tonight when the other two got too boring, none of which will be finished in the next six months. My hand got progressively more cramped but I kept picking up the yarn and hook when I got bored but forgot why I stopped the last time.

I’ve made sure to turn on the space heater and my hot humidifier so my bestest friend, zoya the tortoise, stays warm enough while she sleeps (and so I don’t get any nose bleeds from the dry air in my apartment). I also made sure to decorate by bringing my pillow and comforter from my bed onto the couch, where I plan to sleep, and leaving some random scarves and gloves laying around. 

PARTY!!

but wait! I know what you’re asking yourself. “What sort of snacks does one serve at a party of this magnitude?!?” Good question!  I’m partaking in an aperitif of gin and tonic which I plan to follow with the last Lean Cuisine in my freezer. Since clearly this is a high class party, I’ll be serving baclofen as a digestif and within the hour I’ll be choosing between two fantastic deserts: Xanax and Ambien! After this, I’ll be falling asleep on my couch and likely waking up to a horrible infomercial when I need to use the bathroom in the middle of the night. 

yah! Here ya go 2011 gods! bring on the next year.

All and all its the perfect representation of 2011, don’t you think? (well.. if there had been a blood draw or hospital visit involved it’d have been perfect..) Come on over!

 ?

30 December 2011 ·

Just a quick post to wish you all happy holidays&#8230; holidays that include the least amount of stress and health related issues. 

Just a quick post to wish you all happy holidays… holidays that include the least amount of stress and health related issues. 

25 December 2011 ·

yay torties!!! I am the same way. Love cats and dogs but am really allergic. I have a tortoise named Zoya and she&#8217;s my hero (actually she&#8217;s my emotional support animal but thats a story for another time). Animals do wonders when things are crappy on the health front don&#8217;t they? Pacha is adorable!! yay reptile lovers! 
hellolune:

My allergies only allow me to keep reptiles or fish as pets. I am actually TERRIFIED of fish (every time someone takes a picture of fish, with fish, that have fish in them and then POSTS them on tumblr I look away u.u
I do have a crazy love for reptiles though =) and this here is the most amazing one ever. My redfooted tortoise, Pacha. 

yay torties!!! I am the same way. Love cats and dogs but am really allergic. I have a tortoise named Zoya and she’s my hero (actually she’s my emotional support animal but thats a story for another time). Animals do wonders when things are crappy on the health front don’t they? Pacha is adorable!! yay reptile lovers! 

hellolune:

My allergies only allow me to keep reptiles or fish as pets. I am actually TERRIFIED of fish (every time someone takes a picture of fish, with fish, that have fish in them and then POSTS them on tumblr I look away u.u

I do have a crazy love for reptiles though =) and this here is the most amazing one ever. My redfooted tortoise, Pacha. 

(Source: hellolluna)

13 December 2011 ·

tort-time:

Meet BP. He’s my stuffed sea turtle &amp; MRI buddy. He is up and about in preparation for my MRI. Having him with me helps me have something to focus on, reminds me of zoya, and allows me the opportunity to evoke strange looks from the hospital staff when I tell them his name is BP (which is fun for me… I’m like that)

tort-time:

Meet BP. He’s my stuffed sea turtle & MRI buddy. He is up and about in preparation for my MRI. Having him with me helps me have something to focus on, reminds me of zoya, and allows me the opportunity to evoke strange looks from the hospital staff when I tell them his name is BP (which is fun for me… I’m like that)

(Source: tort-time)

14 November 2011 ·

peatreeiscool:

head above water, some days it’s the best we can do!

peatreeiscool:

head above water, some days it’s the best we can do!

2 November 2011 ·

Its not really Halloween anymore.. but as I go to sleep I’m taking a moment to say “Screw Multiple sclerosis! and all chronic illness” Happy halloween instead! Here is my fav tortoise in her halloween costume and investigating our pumpkin. 

1 November 2011 ·

About Me

Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.

Because sometimes it feels good to be able to say "oh man I can relate".


My background. Brief history of how the shit hit the fan, when the shit hit the fan. Written then from that POV. Lets call this link some context to this blog

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