Chronicles of Life with Multiple Sclerosis
[Image: 6-piece blue colored background with a Siamese cat. Text reads: “Use up your spoons for the day by planning out how you’re going to use the day’s spoons”]
Oh, gods, yes. This is me for the past few weeks. I don’t know if I’m have a pseudo-exacerbation because I’ve been sick or if I’m actually having an exacerbation. Either way, I’m miserable. (Neuro appt. coming up soon, I will find out for sure what’s going on.)
Even more so in the last few months than I thought possible…
Plan how to use spoons - out of spoons - next day wake up and try and remember plan and what new things I need done - Out of spoons mid way through thinking that thats what I’m gonna do- Rest for 2 days and attempt to repeat without success. ugh.
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Flare makes you miss school. Missing school makes you stressed. Stress makes you flare. Repeat.”]
This has probably been done already, but I couldn’t remember.
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “TOP: Doctors are dismissive of every Lupus symptom. BOTTOM: Get yelled at for not going to the hospital for chest pains.”]
Emergency rooms have now become a waste of my time, especially here in Ontario where we have to wait 6 months to be told off by another dismissive medical professional. just pleurisy? DEAL WITH IT
Happy Crohn’s Disease Awareness Day! It’s okay, I know you meant to get me a card.
Welcome to the first installment of Sick Style. I made you a colorboard based on a few of the little friends that keep me going everyday, minus a monthly intravenous infusion that is quite transparent.
I’ll let you know when they come up with an Ankylosing Spondylitis Awareness Day. Until then, I’m taking colorboard requests. Let’s chalk it up to art therapy. Visualize autoimmune disease.
[Image: 6-piece blue colored background with a Siamese cat.Top text reads: “Sleep all day because of depression”
Bottom text reads: “Miss Insomnia”]
I don’t know about anyone else, but I kind of miss the days when I barely slept three hours a week.
I have PTSD, and I have a lot of nightmares(and I can’t wake up from them), spending so little time sleeping would kind of mean that I would spend less time in nightmare land.
I don’t even care about hallucinations from not sleeping, I get them anyway.
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Sees therapist to help with depression. Turned out to just be a side effect”]
I was diagnosed with colitis and depression at around the same time. I was trying really hard to sort out my feelings and I saw a therapist, but no matter how hard I tried, I only felt worse. Turned out my depression was made worse by the prednisone and enemas and once they took me off them, I started feeling ten times better about life.
This is like that time they put me on Wellbutrin because I was dead tired all the time and they thought I was depressed. Turns out I had a freaking autoimmune disease instead. WTF?
ooh they did this to me too! but welbutrin made me have panic attacks while I was tired so ya know.. not all that helpful regardless of what it was.