Chronically Something
Chronicles of Life with Multiple Sclerosis
I Need Followers—Please—I will buy you a Cookie if you follow
Pass it on. Enough Cookies for EVERYONE!!!
We can skip and hold hands. We can sing and dance in the sunshine. We can forget that we are in pain and tired.
A collective fistbump is pretty much all I need. Though I never turn dow cookies. just sayin’.
Also, Hello! sorry you relate to all this crap.
I’m working on some chronic illness DIY projects so that could be fun to try. um.. turtles are cool.. yeah. I’m just happy to meet people that can get that i’m writhing and pain and awake but not up or coherent. :)
DAMNIT. I keep posting in the wrong place.. so yeah Hi again, here is where I talk more about pain and docs and chronic illness and all that not so fun stuff.
MEDS REFILL IS IN MY POSSESSION! FINALLY!
A WEEK LATER!
I’m calling that a win. This could have gone for so much longer.
Gonna take it in a sec and hope it will help with this intense humidity and heat (well warmth since most would say anything in with a 7 first isn’t warm).
Gonna stop myself from bitching now. No contest tonight I hope! :::Fingers Crossed:::
happy world turtle day everyone! :)
meant to post this here! oops!
pistachio
that is a walnut
Landlord loves to feed the squirrels with walnuts.. find half shells everywhere. Been trying to make pill holders out of them just working on how to make them seal and stay properly.
(via queen-of-asgard-at-221b)
CONTEST RESULTS!!
I know you’ve all been waiting on bated breath so wait no more!
Since the results had to be tabulated, you’ve had to wait a whole day for the results of the “What body part will I injure”
During that time you may have thought ”hmm perhaps she it wasn’t an issue” or “maybe she knocked herself out and since she lives alone no one has noticed yet”, well neither are true (though they are very logical thoughts given the scenario).
While I did manage to fall over an extension chord, no bruise has appeared. The true injury was, strangely enough, not to me at all. No, while I was twitching away and trying to get to the bathroom like I was in mission impossible, my fall caused pulled on the extension cord, knocking over the fan and taking with it the toaster oven also attached to the extension cord. it wasn’t till the next morning that I managed to collect it from the floor and put it back on top of the microwave. It looks well enough but we can all attest to the fact that ‘looking fine’ doesn’t mean it works fine. hah! Guess we shall see next time I try and make break and bake cookies at 3am.
not-that-kind-of-chronic you were the closest guess! (sorry wholegrainlofat but you are dirty ). Since you didn’t choose Toaster Oven I guess its not a win but it was my knee that hit the cord so I will happily construct you a trophy if you’d like. It will probably be in the shape of a turtle. Thats how I roll.
Thanks for playing! See you next time for WHAT! WILL! YOU INJURE?
Chronic Badassery!
Shirts and such for people with chronic illnesses! All proceeds will go to helping a fellow spoonie get on his feet!Hey! :D I’m a dude with hypothyroidism and chronic knee pain and I wanted to make some spoonie shirts! I’ve only got a couple of designs up right now, but more will be added later! I get $5 from every shirt sold, and as stated, all proceeds will help me get on my feet.
Here’s a couple of the shirts I have for sale!
Thanks for your time!
CONTEST! Guess what I’ll injure this evening and you’ll get a poorly sculpted torphy with your name (or tumblr name if you choose) on it! sent right to your house!!.
Background Scenario: Over crowded studio apartment, Piles from cleaning abound and in apartment, many outlets barely function.
Situation: Heat and no meds (or ability to install an AC at this hour) = Four fans, 2 outlets, extension chords abound..One seems particularly dangerous as it traverses the path from my bed to the bathroom.
here’s the contest: which body part will I injure due to or while tripping over a chord on my way to the bathroom later??
I call ankle fail induce shoulder injury.
Winner gets a poorly sculpted torphy with their name on it! ‘
votes?
Pharmacy still has not received new 3 mo refill prescription so still no meds
This time of night is when it sucks the most. Helps with pain/ spasms at bedtime so I can fall asleep semi reasonably and works well enough to reduce the times I wake up from spasms/pain in the night by half. The newest but most successful med for symptoms I’ve had and I am staring at the empty 10 refills bottle for the 5th day in a row. Talked to my doc twice today and was told it was called in/ faxed over. Pharmacy says “haven’t heard from anyone about it”
ugh! The drastic weather change is making it feel all the more desperate. I’ll be calling again 3x tomorrow. Fingers crossed.
hate the days like today, you spend the whole day on the phone trying to get appointments, meds refills, talking to collection agents etc, all to end with the feeling that you’ve accomplished nothing but worked a 10 hour day.
Guess this is the part where I say screw it! Cookies, TV and attempted rest of whatever sort presents itself. woooot
DR.OZ
Today Dr.OZ has confessed that he has MULTIPLE SCLEROSIS!!
Does he suggest a diet that will cure him and all of us? hah.. cause thats sorta what I expect from him. #cynical #sorry Its great that he spoke out.
Okay can I start directing posts at the MS community on tumblr???
When you guys are having a flare up, do you ever wish you were a towel someone could shake dry?
I am so tired. But this restless fucking body just wants to spaz out.
I wish I were a towel.
Thats a perfect description of it really. Shake me dry or knock me out. When the symptoms of flares stay forever after till the next it gets extra frustrating. exponentially.
About Me
Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.
Because sometimes it feels good to be able to say "oh man I can relate".
My background. Brief history of how the shit hit the fan, when the shit hit the fan. Written then from that POV. Lets call this link some context to this blog
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Positive Thinking For Losers
Tort Time: All Turtles and Tortoises all the time
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