Chronicles of Life with Multiple Sclerosis
been planing a post to reintroduce myself to the tumblr community after a long hiatus and some self reflection… But while I was working on writing that.. I got several phone calls that pissed me off. So now I will bitch about this to all of you… sorry.
How many of you MSers have received calls from friends/family to let you know that Jack Osborne has MS? I’ve gotten 5 in one day. Some with just the fact of, others telling me that he said he was kicked off a film shoot because he’s Uninsurable. Well? This pisses me off quite a lot. I don’t wish this diagnosis on anyone, celeb or not. But let me be the first to say being “kicked off of a film shoot because you’re uninsurable” as the child of TWO celebrities? doesn’t elicit sympathy. To me that sounds like your fam can pay for that damn insurance while you make a fuckillion dollars an hour, and even if they tell you you can’t make that fuckillion dollars an hour at the moment you will in the future or you’ll sue in response. So, Im glad you’re bringing attention to the disease, but don’t act like you can’t survive without the “insurance” you speak of, that you can’t afford a lawyer to sue on behalf of yourself and the laws the ADA has so kindly provided us (mostly the US that can afford a lawyer heh). Most of us? can’t even imagine that ability. So sorry. I don’t feel your pain. Why should this kid having MS lead to an emotional response from me? I mean, it sucks for everyone but after posting here, reading message boards etc, I’ve met/read a ton of blogs and people who have MS and whose life experience elicit a real genuin emotional response from me. I’ve encountered the stories of a ton of people I respect and who leave me full of admiration, none of whom have been interviewed by or whose blogs have been rebroadcast on CNN. All of the folks on tumblr and on MS world, are the real interest to me. All your struggles, understand, experiences, really leave me humbled and grateful for your openness.. they have changed my outlook on life and can commiserate with me when I just want to announce that things suck and I need to get that out. When it comes to some celeb kids.. politicians wive… all those folks…I’m sorry you are part of our club, I don’t wish that on anyone, Jack Osborne or Anne Romney, you seem like a great folks but I don’t feel full of sympathy, empathy or understanding.
You and I may share an autoimmune disorder but thats where our similarities end. LIve on an income of 800 dollars of state funds a month (and pay off debts at the same time) and worry about where your food is gonna come from each day, see your whole future destroyed and watch your blood family go on to their vacation homes, deal with their step children, etc while you wonder if you have a place to live… maybe then I’ll feel bad for you. Right now? I just hope your diagnosis can help us all get to a cure, I hope the CRAB meds help you out ASAP and that you never have to experience some of the crap so many people here have. I’m glad you have support from your family and the media and I can’t lie, I’m mostly jealous of that. I hope you stay in remmission that you find power in voicing your life changes. I hope you and your family find power in that. I wish you well, but I don’t wanna hear about you while I’m blind in one eye from the heat and humidity in my apartment. I just don’t want to, especially from people that call me only when they hear something like this in the media. This probably makes me an asshole.. eh… I’ve been called worse. So go ahead. Hate me if you will.. judge and unfollow… just don’t call me to tell me about it ok?