fuckyeahfeminists:

self care permission slip

fuckyeahfeminists:

self care permission slip

(Source: wanderingempress, via annakie)

26 April 2013 ·

Back Pain Info You Need to Know

heardcmb:

Back Pain Info You Need to Know
The pain of it all, what do you know about back pain until you feel it yourself. You cannot truly know anything, yet according to statistics, the majority of people in the world suffer some degree of back pain. Some people go through pain. Yet, these people have never survived injuries. Yet others go through pain from injuries, and feel the worst. Ironically, however, injuries are not the only cause of back pain, rather few medical conditions, including multiple sclerosis can cause back pain. Learn more about the diseases that ache, the back. When considering back pain one must ask what its cause is. How can one control the pain? What self-care prevention strategies can one use to ease back pain? What treatments are available to me? Have this one at once!e. You are Worth It!

 yep, and I always end all attempts to feel better with a giant cloud of icy hot that generally leaves me coughing/sneezing and makes zoya mad even when I’m in the other room.    heh. 

18 May 2012 ·

7

I think you have a damn good plan. Thats what I’ve been doing with my “tysabri wearing off” week.. especially the parks and rec part. 

dressesandsnacks:

Feeling pretty exhausted and a bit hurty so I’m going to spend this afternoon doing nice quiet things. Possible list below, but not a to-do list because if I get sleepy I’ll just nap.

• fix hair
• bake cake for boss (trade for Wednesday off)
• trawl through magazines to collect visual inspiration for this year’s school projects
• paint my gnawed off nails
• lotsa Parks & Rec

(Source: sassypastry)

11 January 2012 ·

Life Lessons: We do it to ourselves

So I’ve come to realize, through this wedding experiences that its really my own neuroses that stop me from taking care of myself. Friends in these sorts of situations, the ones that really care, even if they can’t see now… they will not resent you in the end for doing what you need to do. The real problem is when you are not capable of stopping when you know you need to. The ability to stop and say ” no I can’t do this anymore” or let yourself rest and not worry that you’re messing thins up and/or missing out on something, is a skill that really must be obtained in order to survive these sorts of life events. I guess I realize the hardest part isn’t outside of me, but in accepting what I can and can’t do, accepting that there are things I’ll miss out on, and accepting that I won’t always be able t be the superhero I was before or pretended to be before hah. Leaning to live through the minor conflicts and having faith that in the end the people you love and trust most will be there.. thats a damn hard thing to do. I’m working on it. As a passive conflict avoider its not so easy. 

Maybe, however, its what i’m meant to learn from my illness. The friend in question actually pointed this out to me today. That as much as all this sucks. maybe this is life trying to kick me into learning a lesson I’ve found to be one the most difficult thins to internalize for all my life: you can’t please everyone, you can’t always be there to save the day, and you have to learn to say no no matter how hard it is. Another wise friend of mine wrote me and reminded m of this too. I’m gonna keep working on it. Not doing so well this time around, as I feel like shit and have pushed myself way too much, but I’m making progress and am cognizant of the need. So its a first step I guess. I’ll bet I’ll be internalizing it a lot more next week when I spend days collapsed on my couch trying to recover from all of it. 

in any case, i  think sometimes we work so hard to appear strong, to be as “normal ” as possible, that we create these messes for ourselves. We have to learn that our love ones, if thats what they really are, will understand in the end and its OUR responsibility to draw lines and set limits for ourselves. This may be the hardest part of MS of all. I for one and far from having learned it.. but I suppose awareness is a good first step. 

9 December 2011 ·

Sometimes there is nothing more liberating than telling myself that I have the right to be unhappy.

beckyskitters:

Lots of people talk about the right to be happy, but for me I need to tell myself that it’s ok to be unhappy. That my experiences and my pain are valid and if it hurts me then it’s because what I am dealing with is hard. 

And it’s ok.

(Source: rudeflower)

28 November 2011 ·

About Me

Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.

Because sometimes it feels good to be able to say "oh man I can relate".


My background. Brief history of how the shit hit the fan, when the shit hit the fan. Written then from that POV. Lets call this link some context to this blog

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