Chronicles of Life with Multiple Sclerosis
Merry Christmas, Haley!
I’m gonna make it where you can’t feel your right hand. Get it? It’s funny because you’re right handed. Good luck picking up or writing anything!
Multiple Sclerosis, xxoo
OMG!! MS left me a christmas present just like this! #fistbump (with the other hand?)
Hiding gifts like only a spoonie can! Sometimes you just have to use your illness to your advantage ;)
Have a happy & healthy Christmas!
Hahaha! Truth! my #copaxone boxes make great gift boxes too.
and someone is watching you:
When you are alone:
THIS IS PERFECTION! Though in my case it’d be more of a laughing/inappropriate joke to distract others instead of the Im impenetrable face.
Walgreen’s is a cripple’s best friend.
I transferred a bit of cash from Etsy sales to stock up on some pain relief supplies, and a few other miscellaneous comfort items.
So far, this might be my most successful shopping trip EVER.
I am so impressed with some of these things that I am going to write individual product reviews.
Thank you to everyone who placed an order or made a donation.
This small haul from the pharmacy will go miles toward making me more comfortable. The rest of the money I received is in a savings account to go toward medical equipment (new crutches, bars for our bathroom, etc) and toward paying to see a specialist or two in January. I still have lofty goals to reach for both of those, but at least I have made a dent!! :-)
Oh, hey, this is the cost of ONE MONTH’S WORTH of Gilenya.
THIS. have kept all my bills from each med I took.. when people ask what ‘obama care’ can do for you.. THIS. imagine your life without people. Get a diagnosis and then get on your knees and give thanks for taxes. heh. Also SHIT these meds are expensive.. and its not even a cure. heh.
IF YOU ARE GOING TO PUT ME THROUGH THIS MUCH PAIN JUST KILL ME ALREADY GODDAMNIT.
I am literally screaming and sobbing in agony.
Please just someone make it stop.
*hugehugs* Wish I didn’t relate.. and know how much the release of screaming and sobbing in agony is necessary for survival while also sucking more energy and making it all worse. fuck a bunch of this.
Thank gawwwwd my family has health insurance. I’m so lucky. And thank the lawd for Obamacare. Because I will not be making any money in the career I end up with.
THIS. SO MUCH THIS. Its insanity! I took a picture of my bill hah. bet my insurance company is thrilled it didn’t work out for me.. copaxone is cheaper heh.
Can relate in my own way.. but that moment when you still take that med because it helps something but makes other things worse.. and the catch 22 just gets too hard to deal with so you do what you’re “supposed to do”.
fuck that. Ugh is right.
I hate my meds. Taking them reduces the pain so significantly that I end up taking them, but when I do I get so fucking itchy! I’ve had to take a bunch of benadryl to offset the side effects from my medicine, so now I’m doubly fucked up.
How selfish of me is it to be happy that Jack Osbourne has been diagnosed with multiple sclerosis? I can’t help but think that, with that family’s influence and wealth, M.S. awareness will be raised greatly, and my mom can benefit from it since she also has M.S. I’m not happy he has been diagnosed, but I am a little grateful he has been because that disease passes by everyone SO unnoticed. If you have M.S., the only treatment that exists slows the progression of the disease- it doesn’t even cure it. A pill just came out a couple years ago, but people have died from it; most neurologists don’t even recommend patients take it. So all that’s there are injections. Weekly, daily, bi-weekly, etc. Either way, people with the disease ALWAYS get the short end of the stick because, not only do the treatment options suck, but it’s not one of those diseases that gets as much attention as breast cancer. With Jack Osbourne’s diagnosis, maybe we will see more attention brought on the disease, the prevention of it, and the treatment of it