Chronicles of Life with Multiple Sclerosis
" I was misdiagnosed with lupus for years before the doctors figured out it was really MS."
A very important rule of thumb to remember for joint pain and bedtime…
If you find a comfortable position
Not for anything -
Don’t move to go to the bathroom,
Don’t move to stratch your nose,
Don’t move to get a drink…
Just don’t move, you’ll never get comfortable again.
So much this! but it might also be the cause of a recent UTI. you just can’t win.
trying to explain things is getting fucking exhausting. I am coping the best I can and if you don’t like it, tough. It works for me and I’m the one going through this.
This is exactly what I want to say to my doctors. this and SUCK IT.
Based on Google Analytics, the top 12 most visited posts of 2012:
- Painkiller Paranoia: The Stigma of Opioid Use Among Chronically Ill Patients
- Fighting the Fog From Pain With Narcotic Medication? New Study Reveals What We Already Know
- 15 Tips for Your First Visit to a New Rheumatologist
- The Human Pin Cushion: Tips for Making Self Injections Easier
- It’s My (Pity) Party and I’ll Cry if I Want To
- Doctor Disclosure: What to Do After a Terrible Experience
- Download Your Free Chronic Illness Health Information Sheet!
- Chronic Illness & Dwindling Friendships: Finding a Balance and How to Handle Negative or Changing Relationships
- College and Chronic Illness: 19 Tips to Study Strong & Fight the Brain Fog
- The Arthritis Name Game: Five Reasons to Stop Using the “A” Word
- Love Yourself More Chronic Illness Challenge
- Hope: The Thing With Feathers
A huge thank you to the new and old readers here on Chronic Curve for your kind words, your comments your likes and reblogs, your shares, and your interest. As of today, there are just under 20k of you subscribed to Chronic Curve and it just blows my mind and humbles me each time I see more people reading these posts, learning about these diseases, learning about our lives as chronically ill patients.
What a gift that is. Cannot wait to see what 2013 has in store for us all.
As always, thank you for reading.
Love & spoons,
*You can find the artist of this lovely painting here.
To all my MS, Fibro, Lupus, RA, Pancreatitis, and chronic pain friends. Please try your best to have a wonderful Christmas. I know this time of year is exceptionally hard as we are pushing ourselves and trying to appear normal around friends and family. Trying not to show our pain so we won’t make them feel “uncomfortable”. But tonight, I received a huge reality check as to what my body can and cannot do.
My face feels like acid has been poured on it. The muscle in my left arm is protruding and so tight and exceptionally painful. My leg muscles are so tight that walking hurts like heck and when staying still it still hurts like heck. Headache escalating quickly.
Doing my best to not let it steal my holiday spirit. It’s easy to say but hard to ensure that is doesn’t.