Chronicles of Life with Multiple Sclerosis
Nothing says sexy like pink legwarmers and a hospital gown! you’re jealous.
BP2 - emotional support stuffed sea turtle (though his first incarnation is in my closet) was named to remind us of that awful oil spill that harmed so many sea turtles and so that I could respond to the MRI techs when the asked me his name with “Its BP. you know. like the oil company”. I like to cause trouble.
in any case, BP2 didn’t get pre registered for our MRI like I did so we had to stop at admitting before heading to radiology. Once we got there, however, we had a semi painful (don’t cross your legs during an MRI if they hurt.. you have to keep them that way for at least an hour) but decent MRI. Turns out BP is still filled with cotton, with no change. I may have a new lesion that looks like a lighting bolt… We’ll see how the neuro deals with that. (yeah I have a DOCS reader on my computer and all my MRIs)
More importantly? even though the tech wouldn’t get a pic of me on the table wearing them, nothing says sexy like hospital gown and legwarmers. I was a maniac in that MRI machine.
Having multiple sclerosis is great… if there is a Zombie Apocalypse.
Dear fellow MSers, great news. I know it seems all we ever see is the negative side of MS but let’s look on the bright side. Dec 21 will be here in a couple of days, and some theorize this is when the Zombie Apocalypse will happen. But the way I see it, we are safe. Ain’t no zombie gonna want out atrophied, lesion laden brains. So see, we are safe.
What have you done in the last year and a half?
As for me, I have been a busy busy girl.
I have added numerous lesions to my brain, bringing my total count to 26. Which was not a huge feat. In August of 2010, I had 19 lesions, so only 7 new lesions. (That is in the frontal lobe, I did not count the other areas. But the impressive part is the size. And size matters.
My largest lesions 1 1/2 years ago was .9 mm. Which is great. But now they are Measuring, 3, 4, and 6 mm with the largest being 8 mm. Yes, ladies and gentlemen, I have increased their size 8 fold.
I have also managed to narrow the optic nerve in my right eye. My shooting eye. :( This really bother me. There is also atrophy in the optic nerve. My camera and I need that optic nerve.
And speaking of atrophy, I also have generalized brain atrophy. But don’t let that fool you, I will stick you your tush in Words with Friends.
At the margins of the corpus callosum there is also mild T2 bright signal and/or lesions. here is thinning of the corpus callosum.
Now, I have no idea what the corpus callosum is, but this is what i found out…
Function:The corpus callosum is involved in several functions of the body including:
- Communication Between Brain Hemispheres
- Eye Movement
- Maintaining the Balance of Arousal and Attention
- Tactile Localization
Now, I am not so sure about all this because as far as Balance of arousal and attention goes, trust me, the right people can still get my attention and arouse me rather well. ;)
Oh and then there is the spins… which I have managed to grow a tumor on. But it’s benign and unless it starts causing issues does not require radiation or anything.
So yes, I have been a veru busy gal the last year and 1/2.
But all joking aside. This really does bother me. It really is not a good thing. In fact, I was fairly stable to 10 years and then an explosion.
But here is what pisses me off. I was on medication to slow down the MS. But then my neurologist left the state and I had to find a new doctor. I went from one quack to another. I was undiagnosed and taken off the medication. Now, off the medication, my lesions increased in size by 8 times of what they were. And not just one. The largest was .9, the others smaller. Now they are all 2, 3, 4, 5.2, 6, and 8 mm and so on.
So yeah, I am really upset with the doctors. They screwed me over big time. They played God with my brain.
I am still grateful for all that I am. For my mobility. For not being in a wheelchair. For having fairly good balance. For all the things I can do. But the pain, spasms, vision loss, all the things that happens to me on a daily basis have gotten worse over the last year and it did not have to be that way. So yeah, I am kinda upset over that. And for all the joking I may do, fact is, these result scare the crap outta me.