Chronicles of Life with Multiple Sclerosis
I feel like there is such a fine line between helping and hurting with those posters or posts that compare mental illnesses to physical illnesses.
It just kinda turns out that a lot of my friends have chronic illnesses, mental and physical and sometimes both.
I just feel like there’s a lot of erasure going on in those posts.
A friend of mine has cancer, he was fired for going to the hospital and missing a day of work.
Another friend has lupus. And she’d get shit on at work by her coworkers for complaining about her RA, or fatigue.
Physical illnesses can be just as invisible as mental illnesses.
Has any one found any useful apps for chronic illness,pain or fibromyalgia? Please am on the hunt for some to try out ?
I’ve found a few but none that really help. I’ve actually been considering designing my own. Well, actually started outlining etc.. Was gonna ask here…so now I will…
if you could have a dream chronic illness app.. what would it do ?
Based on Google Analytics, the top 12 most visited posts of 2012:
- Painkiller Paranoia: The Stigma of Opioid Use Among Chronically Ill Patients
- Fighting the Fog From Pain With Narcotic Medication? New Study Reveals What We Already Know
- 15 Tips for Your First Visit to a New Rheumatologist
- The Human Pin Cushion: Tips for Making Self Injections Easier
- It’s My (Pity) Party and I’ll Cry if I Want To
- Doctor Disclosure: What to Do After a Terrible Experience
- Download Your Free Chronic Illness Health Information Sheet!
- Chronic Illness & Dwindling Friendships: Finding a Balance and How to Handle Negative or Changing Relationships
- College and Chronic Illness: 19 Tips to Study Strong & Fight the Brain Fog
- The Arthritis Name Game: Five Reasons to Stop Using the “A” Word
- Love Yourself More Chronic Illness Challenge
- Hope: The Thing With Feathers
A huge thank you to the new and old readers here on Chronic Curve for your kind words, your comments your likes and reblogs, your shares, and your interest. As of today, there are just under 20k of you subscribed to Chronic Curve and it just blows my mind and humbles me each time I see more people reading these posts, learning about these diseases, learning about our lives as chronically ill patients.
What a gift that is. Cannot wait to see what 2013 has in store for us all.
As always, thank you for reading.
Love & spoons,
*You can find the artist of this lovely painting here.
Just because I don’t look sick, doesn’t mean I’m not.
In slight addition to the aforementioned, I go through phases of completely longing for human affection and then switching to total misanthropist mode. Now, i’m in my ‘longing for affection’ mode. Maybe it’s because i feel so completely empty inside i just need something to bring me back up to earth, and i feel like maybe if i had someone who was genuinely interested in me as a person and not my fucking symptoms/asthetics/limitations/failures/freakish behaviour as a result of the previous, then maybe i might actually have a reason to feel almost human like again. I miss conversations that would end in the early hours, I miss that connection, I miss just feeling wanted and needed and even special? I miss it. I’ll never get that back because I have declined in more ways than one, physically, literally, metaphorically, mentally etc…everything you name it and i have well and truly declined in it. So i’ll never feel comfortable in that scenario again because of how anxious and paranoid and depressed and ugly i have become because of my ever present tortorous pain levels and distressing symptoms hacking away at me like a chainsaw. Yet still i long for such affection even though I wouldn’t know what to do with it, probably push it away lest I let down my guard and become exposed and vulnerable and that terrifies me because i’m not ready for that. AH contradicting life and times of myself.
I want to write a novel, as well. I feel like everything in my head, needs it’s own book. I can churn out sentences like my body churns out it’s undigested food. In seconds. meh.
Don’t ever start to do your research on that gene mutation you might have at 1am. Just don’t. Especially when your test results come in the next day.