My hips are KILLING ME

its been this way for over a week and getting worse. UGH. This has never been one of my usual flare-ish pain location. Meds aren’t helping, It hurts to sit, stand, lay down. I think my attempts to compensate when walking/etc is making my usual upper back pain worse too (and all the usual pain crap). Its exacerbating the fatigue but laying down hurts so I dunno what to do. 

WAHH. :( Just needed to write-whine about it. Not like I’m gonna go to the doc for this one.. I already know the outcome: “double up on your backlofen, dont’ forget the Tizanadine  and take some ibuprofen  gee thanks (USELESS).

On another note my doc switched me to provigil… it took a month to get authorization and just cause, as he says to me frequently “nothing is easy with you”, my bod made sure to have a reaction to it so I stopped and I’m back on the regular flavor adderal.. wondering why he didn’t just switch me to XR since my issue is the drop off makes me faint.. eh. dunno. tired of asking at the moment. Sticking with the current med regime for now. its been a year+ of new meds hear and there that fail, diagnoses that can’t be treated, and pain that “doesn’t make sense the way you’re feeling it”. 

bitch moan whine.. Thanks for letting me get that out. I’m now going to take more meds and pray for sleep (or if I wait an hour or two.. watch the sunrise over Boston. 

18 April 2013 ·

Reblog if you have a chronic illness. Whether it be mental, physical, treatable, degenerative, severe, incurable, visible, invisible, or anything else.

::raiseshand::

(Source: fibromyalgiaproblems)

9 April 2013 ·

There is no inbetween.

with me either i am showered with thirty minutes of makeup and hair done or i haven’t changed out of my pajama pants in three days. there is no inbetween

(via lifewithautoimmune)

29 March 2013 ·

50shades-of-ba-sing-se:

Wasteful bastards.
#spoon #spoonie #spoontheory #arthritis #chronicillness #chronicpain #fibromyalgia

50shades-of-ba-sing-se:

Wasteful bastards.

#spoon #spoonie #spoontheory #arthritis #chronicillness #chronicpain #fibromyalgia

17 March 2013 ·

First 3 in the photo series I’m working on: CF (Cog Fog)

heh. hopefully get the portfolio back up soon. Till then, these are for your eyes only! 

16 March 2013 ·

Shopping Without Short-Term Memory

  • Me: *walking into the groccery store* Okay wait, what am I buying?
  • Me: Okay....tofu, cashews, ginger snaps.
  • Me: *gets tofu*
  • Me: ...........what else?
  • Me: *finally remembers after walking past cashew isle*
  • Me: They dont have the right cashews, walk to the register.
  • Me: RIGHT ginger snaps.
  • Me: *goes back for ginger snaps, pays for stuff*
  • Me: Now where the heck is my car?

12 March 2013 ·

tastefullyoffensive:

Forgetful Fish

or me every day…

tastefullyoffensive:

Forgetful Fish

or me every day…

(via damnthatswhatshesaid)

7 March 2013 ·

1

suivante-a-la-normale:

Ran out of spoons way earlier and haven’t been able to stop yet :( ugh

(Source: therewill-belight)

1 March 2013 ·

Why isn’t this believable? 
themindofvice:

#fibromyalgia #fibro #spoonie #chronicpain

Why isn’t this believable? 

themindofvice:

#fibromyalgia #fibro #spoonie #chronicpain

26 February 2013 ·

Chronic illness apps??

jayneysgotagun:

Has any one found any useful apps for chronic illness,pain or fibromyalgia? Please am on the hunt for some to try out ?

I’ve found a few but none that really help. I’ve actually been considering designing my own. Well, actually started outlining etc.. Was gonna ask here…so now I will…

if you could have a dream chronic illness app.. what would it do ?

(via wheeliewifee)

11 January 2013 ·

About Me

Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.

Because sometimes it feels good to be able to say "oh man I can relate".


My background. Brief history of how the shit hit the fan, when the shit hit the fan. Written then from that POV. Lets call this link some context to this blog

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