Chronicles of Life with Multiple Sclerosis
A WEEK LATER!
I’m calling that a win. This could have gone for so much longer.
Gonna take it in a sec and hope it will help with this intense humidity and heat (well warmth since most would say anything in with a 7 first isn’t warm).
Gonna stop myself from bitching now. No contest tonight I hope! :::Fingers Crossed:::
happy world turtle day everyone! :)
meant to post this here! oops!
that is a walnut
Landlord loves to feed the squirrels with walnuts.. find half shells everywhere. Been trying to make pill holders out of them just working on how to make them seal and stay properly.
I know you’ve all been waiting on bated breath so wait no more!
Since the results had to be tabulated, you’ve had to wait a whole day for the results of the “What body part will I injure”
During that time you may have thought ”hmm perhaps she it wasn’t an issue” or “maybe she knocked herself out and since she lives alone no one has noticed yet”, well neither are true (though they are very logical thoughts given the scenario).
While I did manage to fall over an extension chord, no bruise has appeared. The true injury was, strangely enough, not to me at all. No, while I was twitching away and trying to get to the bathroom like I was in mission impossible, my fall caused pulled on the extension cord, knocking over the fan and taking with it the toaster oven also attached to the extension cord. it wasn’t till the next morning that I managed to collect it from the floor and put it back on top of the microwave. It looks well enough but we can all attest to the fact that ‘looking fine’ doesn’t mean it works fine. hah! Guess we shall see next time I try and make break and bake cookies at 3am.
not-that-kind-of-chronic you were the closest guess! (sorry wholegrainlofat but you are dirty ). Since you didn’t choose Toaster Oven I guess its not a win but it was my knee that hit the cord so I will happily construct you a trophy if you’d like. It will probably be in the shape of a turtle. Thats how I roll.
Thanks for playing! See you next time for WHAT! WILL! YOU INJURE?
Background Scenario: Over crowded studio apartment, Piles from cleaning abound and in apartment, many outlets barely function.
Situation: Heat and no meds (or ability to install an AC at this hour) = Four fans, 2 outlets, extension chords abound..One seems particularly dangerous as it traverses the path from my bed to the bathroom.
here’s the contest: which body part will I injure due to or while tripping over a chord on my way to the bathroom later??
I call ankle fail induce shoulder injury.
Winner gets a poorly sculpted torphy with their name on it! ‘
This time of night is when it sucks the most. Helps with pain/ spasms at bedtime so I can fall asleep semi reasonably and works well enough to reduce the times I wake up from spasms/pain in the night by half. The newest but most successful med for symptoms I’ve had and I am staring at the empty 10 refills bottle for the 5th day in a row. Talked to my doc twice today and was told it was called in/ faxed over. Pharmacy says “haven’t heard from anyone about it”
ugh! The drastic weather change is making it feel all the more desperate. I’ll be calling again 3x tomorrow. Fingers crossed.
hate the days like today, you spend the whole day on the phone trying to get appointments, meds refills, talking to collection agents etc, all to end with the feeling that you’ve accomplished nothing but worked a 10 hour day.
Guess this is the part where I say screw it! Cookies, TV and attempted rest of whatever sort presents itself. woooot
Today Dr.OZ has confessed that he has MULTIPLE SCLEROSIS!!
Does he suggest a diet that will cure him and all of us? hah.. cause thats sorta what I expect from him. #cynical #sorry Its great that he spoke out.
Okay can I start directing posts at the MS community on tumblr???
When you guys are having a flare up, do you ever wish you were a towel someone could shake dry?
I am so tired. But this restless fucking body just wants to spaz out.
I wish I were a towel.
Thats a perfect description of it really. Shake me dry or knock me out. When the symptoms of flares stay forever after till the next it gets extra frustrating. exponentially.
and sometimes all that struggling to stay above the quick sand makes you stronger.. which would be great if you didn’t subsequently need a nap. Can’t really nap in quick sand.. (cause you needed me to clarify why naping doesn’t work haha)
This hit too close to home O.o
Was gonna queue this for tomorrow but I have a body split between full numb/tingle left leg and right arm while the rest twitches painfully. I’m really pissed I can’t take the one nighttime med that has actually helped me a reasonable amount due to the following ridiculousness:
I slept/writhed in post travel pain most of yesterday. I noticed before heading home that I only had one of my muscle relaxants left (the one that seems to help the most) and immediately called the pharmacy. So as soon as I could manage I forced myself upright and made my way the few blocks to the pharmacy. I didn’t anticipate any issues. I have 10 refills on the stuff so what can go wrong? Seems my insurance company found a way to screw that assumption.
While several of my meds were given to me in 3 month increments in the past, that stopped in the last month or two (and never included MS related meds). I don’t generally care either way as long as I get my medication. Now, however, it seems that those MS meds that were never part of the 3 mo 1 mo switch up, need to be given in 3 month supplies. Ok. Fine. Whatever. No biggie, right?
Seems that, despite the fact that I have 10 refills, more than enough for 3x 3mo fills, they will not fill them until the doctor sends a new prescription that indicates a 3 month refill. Really? is it that they think the pharmacists are bad at math? Really? What the fucking fuck!
So I went home with no meds. They faxed the doctor repeatedly. I called several times but couldn’t get ahold of anyone. Today the pharmacy is still without the new prescription and I’m still without meds. Since its the weekend this will continue till at least monday evening. ARGH.
I know the system doesn’t make sense but seriously? This is exceptionally ridiculous. I call shenanigans.
SHENANIGANS! EVERYONE GET YOUR BROOM!