Chronically Something
Chronicles of Life with Multiple Sclerosis
My battery is low…all the time
Yes. Exactly this. I tell people chronic illness is like being an extra used iphone 3 that can’t hold a charge vs being an iphone 5
There are many questions I have for you all…
like if anyone else on copaxone finds that they no longer absorb the injection well and leak medication despite needle depth… or how I should take the continued “you’re extra flexible and you just adjusted wrong again” statement with no advice/response about how to fix them or lessen the pain?
yes, these are things I would really love feedback on and plan to write about but Instead? I really need to share something that happened today with you all.
Today, I set my hair on fire.
Yes. I was getting into a car with a cigarette. It hit the door frame and got stuck in my hair. I couldn’t find it till I smelt the burring hair smelI and proceded to flail my arms and smack my head over and over like I was doing an Arrested Development chicken dance. Ended up pulling a chunck of my hair out and throwing it into the parking lot to end the incident . I bet it was america’s funniest home videos worthy for anyone watching. I hope you can all visualize that ridiculous moment. Its laugh worthy.
Also if anyone could come by and look at the back of my head and tell me how burnt my hair looks from the back that would be awesome. kthxbye
So I had a good day yesterday. Managed to go out for the day with my mum and look around some shops. And managed to go out last night with friends and didn’t get back til 3am. But now I’ve slept terribly, my wrists and legs are in so much pain and I’m stuck in bed :(
Its never an even exchange. ugh.
From now on, when people point to my spoon tattoo and ask, “What’s that?”, I’m going to start telling them it’s my gang affiliation.
~Heart of the Lion~: /downloads a fitness app and does a 10 minute stretching exercise/Me:...
/downloads a fitness app and does a 10 minute stretching exercise/
Me: Hey that actually felt pretty good.
/a sudden twinge of pain attacks lower back/
Me:….Oh no.
Fibro: “Oh no” is right! You had the audacity to work out again when you just did on Friday?
Me: Well…my doctor did say I should…
we never get to participate in these conversations. why are our bodies so bossy?
you know what pisses me off? days filled with pain and incredible cog fog that, despite extreme exhaustion, lead to nights of sitting up suddenly awake (still in pain) but somehow clear enough to be pensive in the grand life plan sorta way. More so (and frequently), that sudden awake and faux clarity that leads to internal attempts to form coherent responses to questions and comments that happend hours ago (days ago?). You were too foggy to really respond but managed to keep in your brain for just this moment. Damn you body. Can’t you use that energy for good? Occasionally when I’m upright? or not when on pain meds that make speaking even harder? please?
About Me
Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.
Because sometimes it feels good to be able to say "oh man I can relate".
My background. Brief history of how the shit hit the fan, when the shit hit the fan. Written then from that POV. Lets call this link some context to this blog
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