Chronicles of Life with Multiple Sclerosis
If only this were included in the “understanding disability needs and accommodations” seminar I pretend all airline employees are required to take.
What Dr’s think our tender areas are:
What it is really like living in pain:
its been this way for over a week and getting worse. UGH. This has never been one of my usual flare-ish pain location. Meds aren’t helping, It hurts to sit, stand, lay down. I think my attempts to compensate when walking/etc is making my usual upper back pain worse too (and all the usual pain crap). Its exacerbating the fatigue but laying down hurts so I dunno what to do.
WAHH. :( Just needed to write-whine about it. Not like I’m gonna go to the doc for this one.. I already know the outcome: “double up on your backlofen, dont’ forget the Tizanadine and take some ibuprofen gee thanks (USELESS).
On another note my doc switched me to provigil… it took a month to get authorization and just cause, as he says to me frequently “nothing is easy with you”, my bod made sure to have a reaction to it so I stopped and I’m back on the regular flavor adderal.. wondering why he didn’t just switch me to XR since my issue is the drop off makes me faint.. eh. dunno. tired of asking at the moment. Sticking with the current med regime for now. its been a year+ of new meds hear and there that fail, diagnoses that can’t be treated, and pain that “doesn’t make sense the way you’re feeling it”.
bitch moan whine.. Thanks for letting me get that out. I’m now going to take more meds and pray for sleep (or if I wait an hour or two.. watch the sunrise over Boston.
So I had a good day yesterday. Managed to go out for the day with my mum and look around some shops. And managed to go out last night with friends and didn’t get back til 3am. But now I’ve slept terribly, my wrists and legs are in so much pain and I’m stuck in bed :(
Its never an even exchange. ugh.
Hello, this is my giveaway submission! :]
I’m 19, and i have endometriosis & adenomyosis. It affects my life a lot, it’s not only on the days I have my period. Sometimes I feel so helpless… I wish there was a cure…*
Stay strong, endosisters! <3
[Endometriosis Awareness Giveaway entry #9]
Okay, everybody out there with a chronic illness, or pain, life can suck right now because of the changing seasons, or stress, or flares. But lets share some happy things! Does anyone, anywhere have something they think of or do when the pain gets too much or you just want to escape? Anything goes here people, lets help each other out :)
hmm.. netflix, blogging about turtles and tortoises, taking those moments and turning them into artwork.. concepts or completed that transfer feels good.