Chronically Something

been in transit for 9 hours now and my muscles are twitching

and I think it scares the flight attendant a lot.  

15 May 2013 ·

• Tags
• chronic illness
• spoonie
• MS
• Fibro

Dear Florida: (where I give my home state a stern talking to)

We’ve never really gotten along despite spending the first 18 years of my life with you. While I love your citrus, the clear sky, and the turtles and tortoises you house, its just never been enough to win me over. I mean, you always had to make sure the snakes were in my front yard, the mosquitos liked my blood the most, and the roaches were not just big but could also fly. then you’re all too regular 95 degree and humid temperatures just seem ridiculously sucky, even when it was just because it made me uncomfortable and gave me really giant frizzy hair. 

In recent years, however, I feel as though my opinion of you has gone beyond a lack of fondness to pretty serious disdain. I come back to my home state with my new life parter MS and you just can’t help but taunt an already miserable life partnership causing me to swell out of shoes, socks, and clothes in general. You rile up the knees, hips, back, toes and hands, causing them to revolt through pulsating pain on top of that duller ache. You do all of this while making sure all my muscles either contract completely or act as though they are at a latin dance club (twitching 24 7). 

Now you’re recruiting my eye sight into the ring and I have to say… not cool florida. not cool at all. I know MS is a stubborn jerkface but can’t you be the bigger state (you are one of the biggest anyway) and ease into your ridiculously hot and humid weather?  Was that too much to ask? hmmph. I’d say I expected more from you Florida but that would be a lie. 

I hope you think about what you’ve done. 

your former resident, 

NFN 

(and yes, MS is getting a talking to as well but you just focus on you.

13 May 2013 ·

• Tags
• multiple+sclerosis
• MS
• Chronic illness
• Spoonie
• Fibro
• Pots
• Florida
• Heat
• humidity

the truth

If only this were included in the “understanding disability needs and accommodations” seminar I pretend all airline employees are required to take.  

flaresof-fibro:

What Dr’s think our tender areas are:

What it is really like living in pain:

9 May 2013 ·

• Tags
• chronic illness
• fibro
• chronic pain
• spoonie
• ms
• flying hurts
• ADA

me on vicodin

Or me almost every day. heh. 

fibromyalgiaproblems:

(via fogblogger)

1 May 2013 ·

• Tags
• chronic illness
• chronic pain
• MS
• Spoonie
• fibro
• pots
• vicodin

There are many questions I have for you all…

like if anyone else on copaxone finds that they no longer absorb the injection well and leak medication despite needle depth… or how I should take the continued “you’re extra flexible and you just adjusted wrong again” statement with no advice/response about how to fix them or lessen the pain?

yes, these are things I would really love feedback on and plan to write about but Instead? I really need to share something that happened today with you all. 

Today, I set my hair on fire.

Yes. I was getting into a car with a cigarette. It hit the door frame and got stuck in my hair. I couldn’t find it till I smelt the burring hair smelI and proceded to flail my arms and smack my head over and over like I was doing an Arrested Development chicken dance. Ended up pulling a chunck of my hair out and throwing it into the parking lot to end the incident . I bet it was america’s funniest home videos worthy for anyone watching. I hope you can all visualize that ridiculous moment. Its laugh worthy. 

Also if anyone could come by and look at the back of my head and tell me how burnt my hair looks from the back that would be awesome. kthxbye

29 April 2013 ·

• Tags
• chronic illness
• spoonie
• random acts of stupidity
• MS
• Fibro
• Pots
• Cog Fog