Chronically Something
Chronicles of Life with Multiple Sclerosis
and sometimes all that struggling to stay above the quick sand makes you stronger.. which would be great if you didn’t subsequently need a nap. Can’t really nap in quick sand.. (cause you needed me to clarify why naping doesn’t work haha)
This hit too close to home O.o
(Source: flaresof-fibro, via thecvsgirl)
Day Twelve: Comic“Tremors”#Art #Drawing #humor #MS
Was gonna queue this for tomorrow but I have a body split between full numb/tingle left leg and right arm while the rest twitches painfully. I’m really pissed I can’t take the one nighttime med that has actually helped me a reasonable amount due to the following ridiculousness:
I slept/writhed in post travel pain most of yesterday. I noticed before heading home that I only had one of my muscle relaxants left (the one that seems to help the most) and immediately called the pharmacy. So as soon as I could manage I forced myself upright and made my way the few blocks to the pharmacy. I didn’t anticipate any issues. I have 10 refills on the stuff so what can go wrong? Seems my insurance company found a way to screw that assumption.
While several of my meds were given to me in 3 month increments in the past, that stopped in the last month or two (and never included MS related meds). I don’t generally care either way as long as I get my medication. Now, however, it seems that those MS meds that were never part of the 3 mo 1 mo switch up, need to be given in 3 month supplies. Ok. Fine. Whatever. No biggie, right?
Wrong.
Seems that, despite the fact that I have 10 refills, more than enough for 3x 3mo fills, they will not fill them until the doctor sends a new prescription that indicates a 3 month refill. Really? is it that they think the pharmacists are bad at math? Really? What the fucking fuck!
So I went home with no meds. They faxed the doctor repeatedly. I called several times but couldn’t get ahold of anyone. Today the pharmacy is still without the new prescription and I’m still without meds. Since its the weekend this will continue till at least monday evening. ARGH.
I know the system doesn’t make sense but seriously? This is exceptionally ridiculous. I call shenanigans.
SHENANIGANS! EVERYONE GET YOUR BROOM!
I’m getting increasingly tired of the words “in mice” being appended to anything having to do with multiple sclerosis.
Using mice (which don’t get MS the way humans do - the only thing they get is an induced autoimmune response, and without knowing the base cause(s) of MS that’s stupid) is like trying to figure out human anatomy based on a kid’s rubber baby doll.
Agreed! And I’m also getting tired of reading “was found to be XX% effective in comparison to a placebo” and never “was found to be XX% effective in comparison to the other commonly used CRAB drugs”. Small statistical differences between effectiveness in studies done against a placebo are pretty useless when making decisions about which treatment to choose.
It would be great to see some studies of effectiveness between all these meds along with side effect info so we can make decisions based on more than the fact that A was 2% more effective than nothing than B was! Guess the pharmaceutical companies wouldn’t be too interested in funding those sorts of studies.
been in transit for 9 hours now and my muscles are twitching
and I think it scares the flight attendant a lot.
this.. though its starting to seem like I should replace today with this year and yesterday with last year.
Only a fellow spoonie would get it… #chronicallyill #spoons #spoonie #crohns #colitis #RA #rheumatoidarthritis
Dear Florida: (where I give my home state a stern talking to)
We’ve never really gotten along despite spending the first 18 years of my life with you. While I love your citrus, the clear sky, and the turtles and tortoises you house, its just never been enough to win me over. I mean, you always had to make sure the snakes were in my front yard, the mosquitos liked my blood the most, and the roaches were not just big but could also fly. then you’re all too regular 95 degree and humid temperatures just seem ridiculously sucky, even when it was just because it made me uncomfortable and gave me really giant frizzy hair.
In recent years, however, I feel as though my opinion of you has gone beyond a lack of fondness to pretty serious disdain. I come back to my home state with my new life parter MS and you just can’t help but taunt an already miserable life partnership causing me to swell out of shoes, socks, and clothes in general. You rile up the knees, hips, back, toes and hands, causing them to revolt through pulsating pain on top of that duller ache. You do all of this while making sure all my muscles either contract completely or act as though they are at a latin dance club (twitching 24 7).
Now you’re recruiting my eye sight into the ring and I have to say… not cool florida. not cool at all. I know MS is a stubborn jerkface but can’t you be the bigger state (you are one of the biggest anyway) and ease into your ridiculously hot and humid weather? Was that too much to ask? hmmph. I’d say I expected more from you Florida but that would be a lie.
I hope you think about what you’ve done.
your former resident,
NFN
(and yes, MS is getting a talking to as well but you just focus on you.
About Me
Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.
Because sometimes it feels good to be able to say "oh man I can relate".
My background. Brief history of how the shit hit the fan, when the shit hit the fan. Written then from that POV. Lets call this link some context to this blog
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