hungry-feminist: I am in so much pain today. Every single joint hurts. It hurts to walk, to sit, to type. It really hurts to move at all. I seriously need something stronger than Tylenol or Advil. And I’m so unprepared for this fucking final. Fuck. First C in college, here I come. I remember this moment from grad school.. the C part.. the pain I remember from uh.. right now.
Gylenia, Chicken pox, waiting, pain, and other...
Ugh. So I’ve been without internet for a week now (thanks for sucking RCN). In general I feel like my health has been declining but my attempts to fight the pain and fatigue have been increasing so I guess Its a wash. Today I got lots of results from the crap load of tests I’m required to complete before I can start Gylenia. All but the dermatologist has been done so I figured...
Zach Wahls on the Daily Show tonight - watch it.
A fine example of the reality of what LGBT couples face throughout their lives and the realities of chronic illness for everyone, and the extra difficulties faced by LGBT couples. Zach Wahls talks about his two moms, one of whom was diagnosed with MS and the trials of dealing with her treatment etc while her “wife” was not legally her wife and how the hospitals treated her. Showing the...
bunnyears: Sometimes, when pain and life gets to be too much, you are forced to combine drugs to find relief. Tonight is such a night. While the music helped a lot tonight, I finally had to add a second drug… chocolate chip cookies. Come join me for some blues and cookies.
Not every disabled person uses a wheelchair. Not...
and some disabilities become more and less severe depending on the day.. so lets keep that in mind
The real surprise was realizing that duration of pain was far worse than...– What this doctor learned when he was a patient (via endlesssandsoftime)
tumblinglifeseveryglory: when I got diagnosed with M.S and even when I started taking Rebif, even though I knew I’m still the TJ I have been my whole time, I felt different. I felt marked, I felt like a stranger in my own body, and alienated from my body. EVEN THOUGH MS is the actual alien in my body if we’re talking labels in this horrible relationship -_- so when people say hey, I love you…...
If you only read one of my posts, it should be...
fibro-bro: Today, I had the absolute worst doctors appointment of my life. I went to see a doctor at the Polyclinic in Capitol Hill about my back and sciatica. I was going to speak with her about the possibility of a cortisone shot and/or physical therapy. Instead she proceeded to ask me about my medical history with Fibromyalgia. She was shocked that a 22 year old male could have it and...
msproblems: I’ve decided to start this blog as a sort of light-hearted way to cope with the awful disease that is multiple sclerosis. It’ll take me a while to get running, so thank you for the patience. If you have any submissions, feel free to send them to me! It’ll be nice to have things already to post and stuff. If you’d like to be a moderator, please let me know~ :3 -Tiffany /...
took the extra dose of baclofen & other ms pain...
and I stayed awake to watch Jimmy Fallon.. which I wanted to watch but.. I’ve been in SUCH pain all day.. that I think it was that half hour of relief that had me up and watching and tweeting.. but now.. i want to pass out and hope the duller ache stays that way so I get at least 5 hours of sleep tonight and wake up from rest not from serious pain. I won’t bet on that happening.
butyoudontlooksick: Being an emotional train wreck is not fucking cool. Being a head case because you’re on so many medications you don’t even know what a normal chemical reaction in your brain feels like. Or how about the emotional exhaustion that goes along with dealing with things. It’s hard enough to process complex emotions when you’re normal, it’s even harder to do when you’re in constant...
MS hug, my ass!!
bunnyears: What stupid fuck decided to call it an MS hug? Yes, I am about to bitch, so feel free to stop reading… unless you have MS and then many of you can relate. So this MS hug for me is not a nice gentle hug. In fact, it is almost like an electrical shock. It is right along my rib cage, under my breast. I say breast because it is mostly on the left side. My MS favors my left side. It...