…It would be eye-opening if people could walk in someone else’s shoes for one day so they might better understand how others must live. If they did, perhaps they would acquire compassion, patience and a new understanding of what life with a disability is like.
MS is a disease in which the myelin sheaths that surround the neurons in my brain are damaged. This can lead to blindness, an inability to walk, cognitive impairment, and chronic pain. Nobody knows what causes MS and there is no cure. Any treatment that currently exists serves only to slow the course of the disease and to prevent the accumulation of symptoms.
I’ve already experienced a lot of symptoms of MS. My vision goes blurry and blacks out. I am constantly exhausted, sometimes to a point at which I literally cannot function. I forget things a lot and have a lot of trouble concentrating. My hands and legs shake. My joints are in near-constant pain. I have frequent muscle weakness. The muscles in my legs occasionally spasm, which is extremely painful.
I’m currently on Copaxone, a medicine that I have to inject daily in one of seven injection sites. Whenever I inject in my abdomen, it’s cripplingly painful. Whenever I inject in my hips, medicine frequently comes out because there’s not enough fat in those areas for the medicine to dissipate properly.
This all sounds fairly depressing, huh? But I’m not letting this thing beat me. I’m running a 5k in less than two weeks (if I get my ass in gear and start training). I go out, even when my symptoms are acting up. I rock my knee braces when my legs don’t work. I wear my MS bracelet and shirt with pride. I intend to do the MS 150 as soon as I acquire a bike that will go that far. I would do the Tulsa Walk MS this year, but I’ll be out camping with my friends. I have friends who support me and don’t freak out when I can’t walk one day.
I really don’t. Like I mean, it seems pretty standard that because the pain from a herniated disc is just that debilitating, people WITH herniated discs get treated with stronger pain medication than just what is around their house. I have NEVER read of someone GETTING that diagnosis and NOT being prescribed narcotic painkillers. Now I know it must happen, I’m not denying that these things occur other times too, but I follow tons of blogs, look up tons of personal accounts of things online to help me figure things out and deal with what I’m going through, and it’s seemingly pretty rare for someone to get diagnosed with an injury of this magnitude and NOT get a narcotic script, because it’s just that debilitating. It makes sense… if there is anything that narcotic painkillers EXIST for it is situations like this. And then a person won’t be on them forever if treatment works out, because surgery is often looked at within the first months it seems for some people… nerve blocks and physical therapy are tried for some people, but if they fail, surgery is the next step, and given it’s successful, while it may not fix EVERYTHING, it will set someone back in the right direction and they won’t need narcotics painkillers forever, at least… that’s the idea, I think in most cases.
But then… with me the issue is that I’m not SUPPOSED to have a herniated disc… I was told by countless doctors who flat out REFUSED me an MRI for quite a while before I found one who would even take a LOOK that people my age just don’t HAVE disc issues, I’m must too young, they all had their own ideas on how my issues were my own fault none of which made sense. And then when I DID find a doctor who would do an MRI and it showed I had a badly herniated disc at L5-S1, there was very little done for me, and a YEAR later… nothing. I HAVE nothing to take, but I can barely even take care of myself for the pain, there are NO plans for the future to do anything to help me. I mean, when we started, he didn’t give me anything when I was diagnosed. I did nerve blocks, and physical therapy. I did the three allowed during a 12 month period, and all my physical therapy. (I, in fact, still do my physical therapy on my own, despite it seemingly making things WORSE and not BETTER.) From there kind of nothing was done. And now he’s ordered blood work to see if I have a connective tissue/autoimmmune disorder, which I think is irrelevant, because I know I have another illness going on, but that’s not HIS issue, I go to him for my back, so I MIGHT have something like that, YES, but my back doesn’t CEASE to be an issue. He’s saying it might not be if I have something else going on, but I know my body, and I KNOW it is. I have the symptoms TO A T, and I have a herniated disc and I don’t think it’s a coincidence. And I was a competitive jump roper, which is very bizarre, and not commonly seen yet, for years when I was younger, which is why this happened. I remember more than a few times specifically when I had severe trauma to my lower back as a result, but then, it’s also just that the spine absorbs ALL of the shock… they say most back problems start in the feet, and I pounded my feet on hard tile floors for hours and hours a week for YEARS, so if the BACK gets all the crap for what the feet do, then I SHOULD have back problems. But my ortho instead of treating me is now trying to pawn me off on another doctor or bide his time until more nerve blocks can be done… I’m not stupid. Because I’m young… and he doesn’t want to risk treating me with narcotic painkillers, and he won’t even go NEAR the subject of surgery. The words “chronic pain” come out of HIS mouth more often than mine, because he has no intention of FIXING this injury, so he knows the pain won’t stop… because the source it going to remain there… it’s like you never put a cast on a badly broken leg, you’re gonna have some issues, except, broken bones WILL heal themselves… maybe not RIGHT, but they WILL do it. This won’t, it can’t. But when I ask about ANYTHING for pain, he’ll just say “WELL, you really can’t treat chronic pain with narcotics…” which one, is a lie… people do it all the time. They don’t have to continue to treat it, but I was given short scripts to deal with migraines before, and my diagnosis of “chronic migraine” has chronic in the name. And I mean, I’m not a drug addict, or anything, test me and see. And really, even logic alone leans towards the fact that it’s better to treat chronic pain with narcotics than not to treat chronic pain, but I’ve read compelling articles and research that say that treating chronic pain with narcotics isn’t the horror story people believe it is. And then since it’s going to be chronic because of your CHOICE not to even lay out the surgical option on the table for me… shouldn’t I get some relief? Or the surgery?
But then… that’s the thing… I’m young so I’m unreliable, a hooligan, impulsive, irresponsible, likely to abuse my medication if I’m given anything abusable, right? That’s how I’m treated. And then I feel like the surgical option also isn’t laid out because I’m young and because of the risks involved, but more for them legally than for me… I feel like they feel as though because I’m young if something went wrong they are more likely to face legal repercussions, than if I was older. It doesn’t even make THAT much sense to me, but for some reason, the only one who really thought it was maybe the right option for me was the doctor performing my nerve blocks, which is weird, because he’s ACTUALLY getting something from me NOT getting surgery, because I can only assume (or hope) that giving epidural nerve blocks was not just a hobby of his or something, it was something he got paid for, his JOB, but he was honest and said that sometimes they just don’t do the trick and that the surgical path is the right one for a lot of people. (Heck , that doc even trusted me enough to give me percocet instead of lortab after my procedures, because lortab makes me puke roughly 2 out of every 3 times I take it when I’ve had it in the past where percocet I don’t think has ever made me puke, even when I haven’t felt like eating and have taken it anyway. He was an absolute SAINT. He should get some kind of award.) So why can’t my doctor be that kind of person who puts all my options out there and let’s me decide how to live MY life? Because I’m the one who has to deal with it for the rest of my life, not him. Even if my doctor KILLED me, most doctors kill a few people in their careers, but most of them learn to distant themselves from it, so they probably wouldn’t even have to live with THAT the rest of their lives… they’d forget me completely. But I have to live with my body and it’s ailments.
The thing is, if I was older, I feel like I could color half my problems with doctors non-existent.
My mom for example, while she has a broken tailbone, was talking on the phone today with either my grandmother or my father, about how she’s not really in any pain, she even TOLD the doctor she is seeing that, but he’s basically THROWING painkillers at her, he has her on work leave, he saw her the day it happened, a week after, and he’s either calling here to check-in Wednesday or has to go back, or something, but she’ll see him again within the next couple of weeks for sure. And I get it’s a more minor faster healing injury, but I mean, he’s going all out, and taking the risks for her to prescribe her different painkillers repeatedly when she even says she DOESN’T need them, which my mom feels weird about, but it goes on HIS record. And then all the looking after and all. I’m fairly sure if it had been been me, the attitude, or even the instructions for me would have been something to the effect of “walk it off, kiddo”, and then I would have been ignored for six weeks, gone back for a follow up, things would have been however they were, and then they would release me because there would be nothing further they could do anyway.
And then my dad is constantly doing things to himself, injuring this or that… he’s had more surgeries than I can count, and my mom has had a couple too. Does anyone ever talk about surgery with me, when it should be talked about because it’s the only logical course of treatment? Uh uh. No. Not my back. Nothing surgical was even laid out at my ENT appointment, despite that several things that might necessitate surgery were brought up, and doctors tend to lay out what MIGHT be a course of treatment at a first appointment from my experience, even if it’s not the first thing they’ll go to. I mean, that’s a subject doctors won’t touch around me, but I mean, with my dad, a lot of his surgeries were things that possibly COULD have been left, and people COULD have tried to treat medically, some of them they could have even succeeded with possibly, but surgery was faster, so you know. I don’t know… maybe doctors just think I have all the fucking time in the world since I don’t work a full time job, I don’t know… but that doesn’t mean I want my full time job to be suffering…
And then the first impression so many doctors have of me is to think I’m a drug seeker, a low life, or that I did this to myself, because kids this young aren’t sick or hurt. A common thing is that they like to think that me being fat and lazy caused all this instead of the other way around, because when this started, I was pretty thin, and active, and there was no reason I suddenly should have had all the symptoms I did… and who would have KNOWN that being in MASSIVE amounts of pain, or being on ridiculous amounts of drugs with the side effect of weight gain, or being unable to move for how much pain you’re in or how sick you are the majority of the time would cause someone to gain weight? I know it’s just unfathomable how that works. -eye roll- And then doctors like to think I’m a drug seeker, because I don’t have the “luck” of having a diagnosis yet (i hate to call it that, luck, because it can come off the wrong way to people, like saying “hey, I WANT to have an illness!”… but I know I’m sick, I just don’t know what it is yet, so all I want is to know what it is, and a diagnosis brings a lot of opportunities and takes away a lot of pressure and bullshit, so in a way, luck is what it can be to someone who has been so sick for so long but who has remained undiagnosed.) and then classic drug seekers complain of a lot of the same vague symptoms I do. I’ve had the “luck” (that is actually said sarcastically) of developing some other symptoms as of late, that aren’t so vague, or commonly complained of I don’t think, and then my herniated disc WAS confirmed, so if pain is a chief complaint, I have at least one reason to be in a very good deal of it that is confirmed so they should have no reason to believe I’m drug seeking, but still because of my age, so many doctors have the balls to think I guess am playing up my pain (when I downplay it so I DON’T look like a drug seeker) or I’m lying about some of my symptoms or I’m not as sick as I let on JUST so I can get drugs STILL, because of COURSE everyone my age would just LOVE to sit around and get shit-faced, right, because it’s not like teenagers EVER just want RELIEF from actual physical agony, or anything, because they can’t FEEL things. They don’t have souls. Or other things they could do other than get shit-faced, so ALL they want is these drugs so they can get high. Oh, no, maybe they want them so they could SELL them too, I forgot… teenagers like money. >.> I mean, GOD. We’re not a different species, or some type of demon, we’re humans, capable of getting sick/injured too, but for some reason, NO doctor ever buys it.
This is just a really long-winded, rambly rant, I know, but I can’t help but think about this a lot. I can’t help but think if I had waited, if I got sick ten years from now instead of five years AGO, then I would be doing so much better now. I would maybe be fine, maybe not as in cured, but as in functioning, because I wouldn’t have been so much ignored in the beginning, and no one would have dared accuse ME of causing this, or treat me like a drug seeker without giving me a chance. And maybe I’m wrong. And 28 is still young, so maybe with my thought process I’m not going old ENOUGH… I mean, I don’t think disc issues or these types of things are all that common in 28 year olds either, so maybe I’d still be treated like I was a demon, who knows? But I feel like a lot of it is because in the eyes of society, I’m not REALLY an adult, even though I legally qualify as one… I’m still a child. One of the nurse practitioners who treats me repeatedly forgets my age and thinks I’m still in high school. So to them I look like a kid, and to a lot of better off adults in today’s world, the kids in society today are something to be afraid of, and to be incredibly wary about. And at 28 at least they’d probably be able to tell I’m not in high school, and I’d have done something with my life maybe and so they would treat me more respectfully and less like a threat.
This made me think about the stages I have gone through in the last four years. It helps me understand my college experience, and what i went through, battling not only the illness itself, but the emotions that came along with it.
…you don’t answer text messages from a friend because you’re afraid it will lead to a conversation via text and you don’t have the energy to do that.
Oh I know this one… really well. I always feel terrible.. guilty.. then more exhausted and achey.. then bury my face in my pillow and pretend I’m a turtle. heh. Sorry friends, I do love you… and knowing people are still thinking about me does make me feel good.
The Multiple Sclerosis International Federation is asking about your experience with getting your MS diagnosis. Results will be published and a PDF can be emailed to anyone who participates in the survey. The survey takes less than five minutes. Take it here.
the can’t breathe, life is ending, nothing will ever be good again kind of panic attack that ends in tragedy.
luckily i had some lithium, a couple shots of vodka and have regained myself.
i realize how unhealthy that sounds, but when i panic like that i just don’t know how else to sustain myself.
my body is still shaking from my muscles flexing involuntarily. my throat is burning from vomiting, and my eyes are bloodshot from tears and exhaustion.
i hate this disease more than anything else this morning.
it started because i had a flickering thought that this is how it is going to be forever and ever, and i don’t know how to deal with the fact that the pain i’m in today is going to happen everyday, and how do you even go on?
it’s these days when the walls cave in on me and i feel so helpless.
it has to get better. it has to get better. it has to get better.
sometimes its so bad the unhealthy things are “healthy” cause after we’re still alive heh. Hang in there.
(and yeah, maybe I’m just justifying my continuously unhealthy coping mechanisms.. heh. )
I’m feeling more positive lately (doesn’t say too much from the crazy you saw last month) I have about 5 different tests scheduled and a few more in the works before I’ll actually get to start Gilenya. BUT Im also in a crap load more pain and incredibly exhausted since being off the Tysabri for over a month now. I’ve been trying to hide it a bit, push myself and push myself to get out there and do things, focus on other people. I’ve actually been pretty productive lately but it freaking HURTS. hurts. I’m afraid I may collapse if I continue this way.. or maybe its the push I need to be productive? ya know.. till I pass out on the side walk entrance to my home because I was too tired to make it inside? yeah. Maybe thats what will happen. :::whine whine zzzzZ:::::
I’m just reading on the internet all these new things that might help MS. You know what pisses me off? This article.
You know why? Because of this:
The global market for multiple sclerosis is currently worth about $12 billion, he said. About 2.5 million people are estimated to have the disease worldwide.
I understand that medicine is a business. I really do. I read Breast Cancer Inc (among other things) a few years ago and got a real feel for what drives research. It just breaks my heart that somewhere out there someone probably has a cure/remedy for this and other diseases but it won’t be profitable and so we can’t get it.
I’m not by any means one of those conspiracy theorists who thinks that some magic man in an office has this kind of power, nor do I think there is a man in the sky just waiting for me to do good enough for him to cure, I just think that there has got to be something. It’s hard not to think this way when most of the things I’ve read have had to do with profit to some degree.
Just let this sink in “…multiple sclerosis is currently worth about $12billion…” I’ve never read “…cancer is worth $50 billion…” and I really just hate those terms. I am losing my shit right now.
It’s days like today when my legs can barely move, I can’t hear a thing, my hands are tingling and I read things like this that make me ask over and over again - why? Not why me, because its not just me, but why? What is the point?
I feel so defeated right now. I am on my couch for the second day in a row, almost immobile. I used all my energy cleaning my closet for half an hour. I can only hear my own thoughts, the gentle clicks of my jaw as my teeth clench together without me telling them to, and I might just go crazy.
But then there’s hope. And then there’s faith. And knowing that above all else, I can get through this, because there is nothing else do to.
ugh. yep. just gonna repeat your last bit… cause its everything….
So, I am currently not taking MS drugs. It’s been a while. I haven’t been taking any since last year. This continues as I work my way toward starting Gilenya. I felt really good (even better) since stopping my previous MS drug, Rebif.
However, I feel constantly on edge about have a flare-up or full attack. I have no safety net.
So I am taking it really easy. Staying inside in the cool air conditioning. Not doing anything too physical. Getting lots of rest.
Boring. April 24th can’t come soon enough.
i’m in the same place. Working my way towards Gilenya. I have a gazillion tests scheduled for this month and I am also feeling like I have no safety net.. Rebif was the worse medication I’ve ever been on. The side effects were so bad I wanted to die rather than keep going on it. Copaxone was easier, but the flare ups continued while I was on it. I had such high hopes for tysabri, but I’m allergic (of course). So now I’m not on any meds, worried about what my doc things I should or shouldn’t feel, and trying to figure out how I’m going to make it to all my tests when I feel like I should definitely not be driving. Sucks yeah? yeah. You’ve got it right there. Stay cool (easy for me in MA), get lots of rest, and sit out of too much activity. MS is so much fun. Good luck to you! maybe we can high five each other when we finally start gilenya.
YES: My health can be scary because most people don’t / won’t know what to do in case of an emergency. I try to be as transparent as possible. More generally, I believe my health makes me more of a target: I get far more attention (looks and approaches) when I have my cane out. I’ve heard that I get more attention because, honestly, I’m more confident now than I have ever been, but I’ve also been warned that I look naive, helpless, and welcoming. I don’t like being pitied, and I definitely don’t want to be approached by someone that thinks I’m easily impressed, or in need of male attention. I need to work on my ‘bitch’ face. Oh, and I can’t go out as much, so dates can be cancelled at the last minute. Most people don’t like that.
If I am in a relationship, I’m worried that my health will complicate things. It has in the past, so “in sickness and in health” hovers over many of my decisions.
NO: The ‘quality’ of men that approach when my cane is visible are generally educated, motivated, and marriage-minded. I am also approached by more non-MOC now than previously, so in theory, I have a wider pool of men to select from? lol I don’t know.
This is a great post. I ask myself this all the time. ya know… while deleting match.com emails. Mostly I think dating is obnoxious… but thats just me.
A new study in Health Services Research shows that one of the leading reasons for Chronic Illness complications is due to the overwhelming amount of appointments with several different specialists each year.
In younger patients, even those with more than one Chronic Illness to manage, the tendency to keep track of their appointments than an older patient with only one illness.
This seems to be something close to common sense, as we get older our symptoms increase in severity, our tolerance for pain goes down, we get tired, etc. But that doesn’t mean this should be an issue.
Because we see so many different specialists, it generally means that our doctors are not affiliated with one another, or connected in any way. That leaves the responsibility up to us to make sure that each doctor knows all details, and that we keep up with each of them regularly in addition to when necessary. This isn’t easy for many of us, especially with the addition of our symptoms.
We’re seeing workshops popping up in various places in America, usually inspired by or run by Eastern practitioners, designed to help sufferers of Chronic Illness become more organized and to stay on top of their medical needs. Most of the time these workshops are free.
For starters though, here are some tips:
Give your doctors, ALL your doctors, the express consent and instruction to share all your documents (tests, reports, etc) with each other. They may act annoyed with you, but don’t have any of that. Their offices will fax your information if you tell them. This way, if you forget that your cardiologist noticed heart palpitations the next time you see your nutritionist (or whatever the case may be), you are covered.
Try to book appointments close together. I know this is not always possible, but keeping your conversations in your recent memory is always helpful.
Keep a pain/symptom diary. There are iphone/android/windows phone apps, or you could just jot things down on paper. But keep it, and bring it with you to each appointment to keep your symptoms straight. Mark the symptoms with a severity level, probably from 1-10. I know I have a tendency to play down my symptoms after they’ve gone away, so this will keep me from sabotaging myself in that way.
Please feel free to add anything…Does anyone have any other suggestions for managing multiple doctors?
I wish I had the cognitive ability these days and the skills to design an app for just this issue. I dream about it a lot. I want have a million wishes for one system that could help me keep all this connected … doesn’t seem to exist.
I’m going back to work today - needless to say they cut the amount of staff to save money so instead of having 3 aides on a unit we get 2 which means more work and more stress and no time to break. I have 32 hrs of this crap which I already know will not be good on my body. I’m going to show…
God. Thinking of you. here’s a useless but well intentioned hug.
The wheel perspective
Stella Young Ramp Up 27 Mar 2012
It doesn’t matter how we got like this. Really. Are you asking because you want to know or because you need to? If you’re just sitting next to one of us on the train, or taking our order at a cafe, you don’t actually need to know. If we’ve actually met and had a conversation beyond “Do you want honey with your chai?” then perhaps it gets a little more relevant. It might come up in conversation, and when it does, we’ll be happy to tell you. It’s just not a very good opening line.
We heart our chairs. I’ve had five wheelchairs in my lifetime and I’ve loved each one as much as the last. I’ve had my current chair for almost 17 years. Based on the recommendation that they should be replaced every seven or so years, this old girl is about 162 wheelchair-years old. She’s well worn and well loved. One day soon she’ll need replacing, and I’ll come to love that one too, I’m sure. My chair is the last thing I touch before I climb into bed at night, and the first when I climb out. And, let’s face it. without our chairs, there’d be no getting out of bed at all for a lot of us. We are not, as we so often see written, “wheelchair bound”. We are liberated by our chairs. They give us the freedom to be who we are, and we love them for it.
We don’t mind if you ask us to go for a walk. Seriously, there’s no need to avoid saying things like “I must be running along,” or “Let’s go for a walk.” Those kinds of phrases are a part of everyday language, and because we live in the real world too, we’re really not that sensitive. I have a blind friend who once told me that the most annoying thing that ever happens to her is people apologising for asking her if she sees their point. Touche.
We have heard that joke before. You know, the one you were just thinking of. The one about drink driving, or whether or not we have a licence. Even the one about putting a V8 engine on the chair. Heard it. We’ve heard them all, so forgive us if your brilliant one-liner only elicits a polite smile. Sorry about that.
We are not on the tram so that you can hang your shopping bags on us. Our chairs are a part of us and a part of our personal space. Leaning on someone’s wheelchair is a bit like leaning on someone’s shoulder. You wouldn’t do it to a stranger, or someone you’d only just met. And I’m willing to bet you wouldn’t hang your full-to-the-brim enviro-bags on someone’s conveniently outstretched arm. Your shopping may be heavy, but our chairs are not shelves.
Just because we are hanging out with a non-disabled person doesn’t mean they are a carer. Disabled people have friends, partners, kids, parents, siblings and families just like everyone else. Quite often these people are hanging out with us because they like to, not because we need looking after, or because they are kind, generous souls. It’s annoying when people assume the only reason someone is hanging out with you is because they have to. Many of us do have personal assistants to help out with some stuff we can’t do, but most of the time the people hanging out with us are just our mates.
We’re into all the same stuff you are. OK, maybe not exactly the same stuff (I’m really not into snowboarding, if I’m honest), but you know what I mean. We don’t all think about disability all the time. I like knitting and crafty things, as well as disability theory and politics, feminist things, comedy things and fashion things, too. I’m really lucky to have a job where I get to be quite nerdy about disability culture and politics as editor of Ramp Up. We can talk about everything from sport to politics, television to weird things non-disabled people say to us. (Not you, obviously, you’re lovely.) Having contact with so many different disabled folks in Australia reminds me how different we all are, even though we have some experiences in common.
Your kids are going to stare. And that’s perfectly OK. When you look different to everyone else they’ve ever seen, kids will naturally stare. There’s no need to be embarrassed about it or consider it bad behaviour. Kids are interested in anything that’s different to the norm. And the thing is, if you tell them not to stare, or discourage them from asking questions because you think it might upset us, you’re teaching them that looking different is something to be ashamed of. It’s not. We’d much rather have an honest conversation with your kids than have them shuffled away from us like we might bite them. Besides, eventually they’ll say something really cute and funny, like “Are you imaginary?” or “Why are you wearing shoes?”
Feel free to offer us a hand, but don’t get too upset if we say no. If you see someone who looks like they’re struggling to do something, it’s very tempting to jump in and do it for them. But you really shouldn’t. It’s absolutely fine to offer your assistance, but don’t be surprised if it isn’t required. Sometimes we look pretty clumsy doing everyday stuff, like shopping or knitting on the tram, because we might do it differently to the way you do it. But we’ve had years of practice at being us and we’re generally in control of what we’re doing. Make the offer by all means, but don’t be upset if we say “thanks, but no thanks.”
We don’t all know each other. No, I don’t know Jenny, the girl on your street who uses a wheelchair too.
We are not brave. Among the aforementioned weird things some non-disabled folk like to say to us are things like “Oh you’re so brave/courageous/inspirational!” We’re not, really. We’re just living our lives like everyone else. Just as you’ve worked out the easiest and most effective way to get along in life, so have we. There’s no need to praise us for just going about our everyday business. Going to the shops to buy milk doesn’t take any more courage for me than it does for you.
If you can use the regular loos, and they’re free, don’t use the disabled ones. OK, we get that not all disabilities are visible and there are all sorts of reasons someone might need a bit of extra space. A friend of mine is diabetic, and she prefers to use the disabled toilets so she has a bit more room to inject her insulin. That’s fair enough. But when we wait outside for 20 minutes and you stroll out with a newspaper and a completed sudoku under your arm, you probably weren’t checking your blood-sugar levels. If the other toilets are occupied, and you’re going to be quick, go ahead. Just remember that needing to poo is not an access requirement. Thanks.
I love so much about all of these points, especially the last one.
Going to throw in here, too, that I don’t give a shit if you’re “going to be quick”; don’t fucking park in the disabled parking spaces if you aren’t disabled. Jackasses.
yeah, recently I was asked to call a credit card company and claim disability because I’m on the card and the interest rate is too high.. heh.. cause thats cool while I’m trying to figure out how to make ends meet while my toes are curled up to the point of not fitting in shoes.. which would suck more if I wasn’t so exhausted I didn’t need shoes cause I’m not leaving the house at the moment.