June 2012
14 posts
4 tags
WatchWatch
ernestsewell: (via CNN) Jack Osbourne on fighting MS JUST LIKE WE ALL ARE. (just sayin’)
Jun 30th
2 notes
5 tags
Tired
sparklebutonce: One of the symptoms of MS is fatigue. Definitely feeling that one today. Had last date with plasma exchange. It was a bittersweet break-up but we knew it was best to discontinue. Dad was able to come and experience some of my therapy this morning. I have been walking well with my forearm crutches, today 350 feet. These will mostly be used for around the house and short visits....
Jun 29th
6 notes
9 tags
wow chronic pain
stygianhydra: I can barely turn my head to the right, nor can I tilt it down. I thought it was on the verge of calming down but it’s starting to spread down my back and into my right shoulder. (said shoulder also feels like it’s rolling on freaking gravel when it moves. jesus. fucking. fuck.) AWESOME because I don’t need to look down at my books another 12 hours today to review and then take...
Jun 28th
3 notes
6 tags
Jun 27th
10 notes
3 tags
Jun 26th
2 notes
6 tags
Jun 25th
36 notes
5 tags
How did that happen?: Cool MS stuff in the works →
marbles4ms: Nearly 12,000 neurologists and investigators convened in New Orleans in April to present findings at the American Academy of Neurology’s annual meeting. This would be cool.. “Smartphone to track MS progression – Sashank Prasadd, MD (Brigham and Women’s Hospital, Boston) and team presented a…
Jun 24th
6 notes
9 tags
When I'm wrong I'm really wrong…and yeah I was...
So last night I got very frustrated about the phone calls from people I barely speak to who were calling to inform me about Jack Osborne being diagnosed with MS.  I suppose in many ways the real frustration here was the repeated “excited” sounding calls that involved people saying things like you’ve got a celebrity illness. Ugh. I’ll get back to that in a second round of...
Jun 23rd
9 notes
13 tags
so I've been away for a while...
been planing a post to reintroduce myself to the tumblr community after a long hiatus and some self reflection… But while I was working on writing that.. I got several phone calls that pissed me off. So now I will bitch about this to all of you… sorry. How many of you MSers have received calls from friends/family to let you know that Jack Osborne has MS? I’ve gotten 5 in one...
Jun 23rd
12 notes
9 tags
Jun 22nd
70 notes
How did that happen?: Cool MS stuff in the works →
marbles4ms: Nearly 12,000 neurologists and investigators convened in New Orleans in April to present findings at the American Academy of Neurology’s annual meeting. This would be cool.. “Smartphone to track MS progression – Sashank Prasadd, MD (Brigham and Women’s Hospital, Boston) and team presented a…
Jun 9th
6 notes
Jun 8th
13 notes
fughawzi: MY BODY IS EVIL.
Jun 7th
3 notes
Jun 1st
28 notes