April 2012
68 posts
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Mixing drugs.
bunnyears:
Sometimes, when pain and life gets to be too much, you are forced to combine drugs to find relief. Tonight is such a night.
While the music helped a lot tonight, I finally had to add a second drug… chocolate chip cookies.
Come join me for some blues and cookies.
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Not every disabled person uses a wheelchair. Not...
and some disabilities become more and less severe depending on the day.. so lets keep that in mind
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“The real surprise was realizing that duration of pain was far worse than...”
– What this doctor learned when he was a patient (via endlesssandsoftime)
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tumblinglifeseveryglory:
when I got diagnosed with M.S and even when I started taking Rebif, even though I knew I’m still the TJ I have been my whole time, I felt different. I felt marked, I felt like a stranger in my own body, and alienated from my body. EVEN THOUGH MS is the actual alien in my body if we’re talking labels in this horrible relationship -_-
so when people say hey, I love you…...
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If you only read one of my posts, it should be...
fibro-bro:
Today, I had the absolute worst doctors appointment of my life. I went to see a doctor at the Polyclinic in Capitol Hill about my back and sciatica. I was going to speak with her about the possibility of a cortisone shot and/or physical therapy.
Instead she proceeded to ask me about my medical history with Fibromyalgia. She was shocked that a 22 year old male could have it and...
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So
msproblems:
I’ve decided to start this blog as a sort of light-hearted way to cope with the awful disease that is multiple sclerosis.
It’ll take me a while to get running, so thank you for the patience.
If you have any submissions, feel free to send them to me! It’ll be nice to have things already to post and stuff.
If you’d like to be a moderator, please let me know~ :3
-Tiffany /...
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took the extra dose of baclofen & other ms pain...
and I stayed awake to watch Jimmy Fallon.. which I wanted to watch but.. I’ve been in SUCH pain all day.. that I think it was that half hour of relief that had me up and watching and tweeting.. but now.. i want to pass out and hope the duller ache stays that way so I get at least 5 hours of sleep tonight and wake up from rest not from serious pain. I won’t bet on that happening.
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butyoudontlooksick:
Being an emotional train wreck is not fucking cool. Being a head case because you’re on so many medications you don’t even know what a normal chemical reaction in your brain feels like. Or how about the emotional exhaustion that goes along with dealing with things. It’s hard enough to process complex emotions when you’re normal, it’s even harder to do when you’re in constant...
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MS hug, my ass!!
bunnyears:
What stupid fuck decided to call it an MS hug?
Yes, I am about to bitch, so feel free to stop reading… unless you have MS and then many of you can relate.
So this MS hug for me is not a nice gentle hug. In fact, it is almost like an electrical shock. It is right along my rib cage, under my breast. I say breast because it is mostly on the left side. My MS favors my left side. It...
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bunnyears:
This is worth watching, regardless of your political leaning. This is not to say you should or should not vote for Romney, this has nothing to do with Romney or Fox news, but rather about what MS is like, how it does not discriminate, how even with money, you cannot escape the horror and pain of MS.
Feel free to comment, but NO political slandering against Romney nor Obama. I will...
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A global map of MS
mymsdiary:
This page is interesting. It shows you an overview of the prevalence of MS across the globe. Not sure how up to date the map is but still… it is interesting.
Or you can see the figures on this page, which tallies with the numbers on this BBC news article from 2008.
Then there is this list of famous people who have/had MS.
Interesting.
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I am seriously going to lose it.
this-pain-wont-let-me-rest:
I hate being me. I hate being sick, I hate being in pain. I hate not being strong enough. Being weak. Needing help. I hate that to everyone around me this weakness always looks like some failure I choose. I hate that it couldn’t be further from the truth.
I hate that I live in a household where I am not the only person who is disabled, but because of the differences...
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MS, Self-Esteem and Emotional Health →
betterleftunsaid7:
…It would be eye-opening if people could walk in someone else’s shoes for one day so they might better understand how others must live. If they did, perhaps they would acquire compassion, patience and a new understanding of what life with a disability is like.
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STRENGTH IN PAIN: I don't know how to accept... →
strengthinpain:
The worst guilt is to accept an unearned guilt. -Ayn Rand
———————————
When I fell down as a kid and broke my arm skating……… I blamed myself and cried to my mom about how sorry I was.
When I got diagnosed with AB&C, I blamed myself…. and cried to my mom about how sorry I was.
…
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asking an MS patient to type quickly when her...
dreamysaturn:
worst spell caster ever. T-T
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WARNING: Personal Post Ahead - I have multiple...
hungry-feminist:
MS is a disease in which the myelin sheaths that surround the neurons in my brain are damaged. This can lead to blindness, an inability to walk, cognitive impairment, and chronic pain. Nobody knows what causes MS and there is no cure. Any treatment that currently exists serves only to slow the course of the disease and to prevent the accumulation of symptoms.
I’ve already...
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paradoxxed-deactivated20120622 asked: I enjoy telling people I am super woman.. cause I deal with the pain. I believe you are bionic. :)
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dramaticmachines:
I’m trapped inside this body that is not capable of fully living.
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As if being young and sick isn't bad enough, I...
this-pain-wont-let-me-rest:
I really don’t. Like I mean, it seems pretty standard that because the pain from a herniated disc is just that debilitating, people WITH herniated discs get treated with stronger pain medication than just what is around their house. I have NEVER read of someone GETTING that diagnosis and NOT being prescribed narcotic painkillers. Now I know it must happen, I’m not...
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5 Stages of Accepting a Chronic Illness →
ihaveuc:
This made me think about the stages I have gone through in the last four years. It helps me understand my college experience, and what i went through, battling not only the illness itself, but the emotions that came along with it.
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you know you're sick when...
dailylifewithchronicillness:
…you don’t answer text messages from a friend because you’re afraid it will lead to a conversation via text and you don’t have the energy to do that.
Oh I know this one… really well. I always feel terrible.. guilty.. then more exhausted and achey.. then bury my face in my pillow and pretend I’m a turtle. heh. Sorry friends, I do love you… and...
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MS Diagnosis Survey
anonymous-sibyl:
The Multiple Sclerosis International Federation is asking about your experience with getting your MS diagnosis. Results will be published and a PDF can be emailed to anyone who participates in the survey. The survey takes less than five minutes. Take it here.
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agracelamb:
If people knew half of what I went through…
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hannahinunderland:
Those days when you wake up feeling good, but then your illness kicks you in the face and you feel like dying.
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You know that feeling, like when you have the flu?...
itdoesntkillmeitmakesmetougher:
Like whwen you have that throbbing headache,
youre cold, and then youre sweating your ass off.
That overwhelming need to sleep,
which of course comes with that brain fogginess, not being able to think straight.
That feeling in your stomach, not exactly nausea, but just not wanting anything in your body.
and the worst of them all, the aches.
That deep,...
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panic
droppedthreads:
i just had a massive panic attack. the can’t breathe, life is ending, nothing will ever be good again kind of panic attack that ends in tragedy. luckily i had some lithium, a couple shots of vodka and have regained myself. i realize how unhealthy that sounds, but when i panic like that i just don’t know how else to sustain myself. my body is still shaking from my muscles...
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The waiting for new meds/testing time blues
I’m feeling more positive lately (doesn’t say too much from the crazy you saw last month) I have about 5 different tests scheduled and a few more in the works before I’ll actually get to start Gilenya. BUT Im also in a crap load more pain and incredibly exhausted since being off the Tysabri for over a month now. I’ve been trying to hide it a bit, push myself and push...
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Treatment$
droppedthreads:
I’m just reading on the internet all these new things that might help MS. You know what pisses me off? This article.
You know why? Because of this:
The global market for multiple sclerosis is currently worth about $12 billion, he said. About 2.5 million people are estimated to have the disease worldwide.
I understand that medicine is a business. I really do. I...
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