March 2012
97 posts
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Dear Rheumatoid Arthritis
balexan-der:
I hate you. K. Thanks. Bye.
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Does anyone know anyone with Multiple Sclerosis?
thinkiiingfitandthin:
I need to speak with someone asap!
Hi! My blog is about chronic illness.. but mostly about my trials and tribulations with Multiple sclerosis (all multiple of them… hah.. also its about me making bad jokes to get by) There are lots of us here.. all with really unique perspectives and symptoms (since thats how MS works). Anyway, Send me a note if you want to talk....
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I get the gauntlet of tests run tomorrow
ladyhippie:
An MRI of my back
A myriad of blood tests
C-Reactive Protein (CRP)
Complete Blood Count (CBC)
Sedimentation Rate (ESR)
Lyme Antibody
Human Leukocyte Antigen (HLA b27)
Some different kind of CRP specifically pertaining to Lyme’s Disease
Basically, here’s what they’re testing me for: Lupus, other autoimmune diseases, ankylosing spondylitis, and Lyme’s disease.
Cross your...
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SO here's a bit of an update
murder-otica:
I haven’t really felt the need to go on tumblr with all the shit happening right now but here we go - I promise I’ll be back eventually and thank you to my followers who haven’t unfollowed me over this stupid shit :)
I am almost 100% sure I have hyperthyrodisim thanks to rebif…I have all the symptoms and my blood work came back off the other day with my thyroid anyhow.
I got...
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Fatigue. Such awful fatigue. Ugh
This is me. Then doc wonders if its because the meds I’m on to fight fatigue are making it worse.. says to stop taking it.. and then I don’t move for days. Oh then they realize I’m allergic to my MS meds so that might be part of it.. and then I start over.. in the end? I can’t help but hate people that ignore/trivialize the fatigue. They are lucky or ignorant. the end.
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Passing Storm →
mynewnormals:
I can only take so much from MS before I pop.
and you’re always so much stronger than I can ever imagine. Hang in there. If you need a paddle or hight ground look me up. :)
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"Well, I can have an opinion, you don't have to...
this-pain-wont-let-me-rest:
No, though, you really can’t. There are some things you CAN’T have legitimate opinions, even if you TRY. If you know nothing about it, if it’s not something you can understand or learn, then you just really can’t have an opinion on it.
My dad mostly keeps quiet, so he’s not as bad as my mom can be, because mom always has something to say, but his “opinions” are...
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Fatigue. Such awful fatigue. Ugh
This is me. Then doc wonders if its because the meds I’m on to fight fatigue are making it worse.. says to stop taking it.. and then I don’t move for days. awesome
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Screw you, autoimmune.
pagentstorm:
I have a handful of hives today. Excellent…. Let spring begin.
boo :(
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MS inside me.
pamelasutherland:
There are some part of my MS that are hard to talk about, even with my husband. Last night I had to brace myself and have one of those conversations. When you are close to someone it can be harder to speak than it would be with anyone else. You don’t want them to see you as anything other than the person they married, especially when you have already had to chip off small...
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Brain Fog
blue-as-the-ocean:
This is probably going to be a really long post and it’s probably going to be about Ehlers-Danlos and hypermobility and stuff so if that will bore you then stop reading…
NOW
I say probably because I haven’t written it yet so it could turn out to be about anything.
One thing I can say for sure is that it’s going to take a long time to write because I keep having to take naps...
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insight
droppedthreads:
here is an example of how much my legs hurt today:
after i woke up this morning, i took five minutes to get the energy to leave my bed. i walked the 40 feet to the living room to the couch and had to rest. i have to go downtown today to run some errands, but i have to shower. i honestly didn’t think i had the energy for both. i took a heap of b vitamins and had some green...
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There is a difference between never letting MS...
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Spoonie Tip #5
blue-as-the-ocean:
The Spoon Theory
Doctors are like jeans.
I felt the need to write this up after reading some recent posts from a few people I follow that have been made to feel like crap by their GP’s.
I can’t remember if I read this analogy somewhere or if it’s one of mine so I’m going to treat it as mine.
So yeah, doctors are like jeans. You gotta try before you buy. There’s nothing...
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haha! up all night wins for MS reference “It’s multiple sclerosis so it’s kind of a lot of sclerosises”
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My being sick is starting to affect my grades.
one-spoon-at-a-time:
I can’t accept this.
the hardest thing to deal with. Seeing the impact on the rest of your life
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Rambling...
mymsdiary:
I’m not ashamed of having an illness like MS. Not sure why I should feel ashamed of it either.
At the same time I don’t feel comfortable announcing the fact.
I’ve said this before in my journal haven’t I? I feel as though I have.
It does seem to always come back to this point for me… the other people issue. Telling them or not telling them. Showing them or not showing them. ...
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thanks Tim Roth! MS Awareness week on twitter
Tim Roth so kindly retweeted for me. Much respect to him, his family, and all of you! I meant month but we can make the week last longer!
@TRhooligan1 says:
Have close family with MS… Multiple sclerosis awareness week…spread the word.. RT @TortTime: @TRhooligan1 can ya send some love for Multiple sclerosis awareness week? Sucks our life away slowly & unpredictably but we do it...
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MSAA - 2012 Art Showcase →
strengthinpain:
I would’ve loved to submit something, I just don’t understand the directions.
me too! Also seem to only take 2d submissions… or thats all I’ve seen. hmm.
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Anyone on Gilenya?
So other than going back on Copaxone (which sorta failed for me) my only other option seems to be Gilenya. I’m sorta scared of it to be honest but then again I should have been more scared of tysabri hah. Anyone on it? have any thoughts?
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foreverfatigued:
Life with a chronic illness is so fun.
I mean, who doesn’t enjoy being forced to lay in bed for weeks straight?
Who doesn’t like those nights where you’re so tired you cant sleep?
Losing all your friends because they dont understand is SO fun.
Having to convince doctors that your pain is real is always enjoyable.
Oh, and what about all that soreness and pain? It’s so...
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The Chronic Illness Goody Bag
diseaseonmysleeve:
I’ve had to watch a lot of friends with chronic illnesses go through really rough times recently. It’s not easy to watch my friends jump over hurdles as I sit here in remission chasing my dreams at college. I know how lucky I am, but counting my blessings isn’t enough. I’ve felt helpless. I want to do something for them, but what?
I’ve mulled this over the past few weeks,...
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Are you kidding me?
ugh. You know, I was getting back to not obsessing being in control and thinking as positive as a cynic like me can for my future. I’ve been throwing myself into this installation project I’m working on and was back to that today trying to let go of all the crazy thoughts thanks to all of your support.
WELL. my neurologist’s assistant just called to tell me my allergy test in...
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That awkward moment where you don't actually put...
myarmouriscontempt:
And you’re like, “oh hey, this doesn’t hurt at all tonight”, and then you feel something cold running down your leg, and you’re like, “T_T fuck, there goes $84.”
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The 2011-2016 Outlook for Multiple Sclerosis...
ndrickoc510:
The 2011-2016 Outlook for Multiple Sclerosis Therapeutics in North America
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