February 2012
95 posts
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dreamysaturn:
When I was 17, I did my Junior year project paper on MS.
It was on how no matter what it should be medicated and blah blah blah.
I want to go back in time and punch 17 year old me in the face.I wasn’t diagnosed when I wrote it. I thought MS was something other people got, not me. I didn’t know how terrible it felt to not be able to do some things, or how badly injecting hurt.
I...
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caitlinjoudrey asked: I hope this doesn't make you...
littledip:
MS is kinda like that step sister that you stand next to and you’re far prettier having stood next to her but she’s really annoying, so painfully annoying that you have to stab her everyday with a subcutaneous injection and introduce her to people who really don’t want to meet her but have to.
this is my favorite description of MS ever. you win!
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Chronic illness and PTSD.
alemonlemoned:
from the National Center for PTSD:
All people with PTSD have lived through a traumatic event that caused them to fear for their lives, see horrible things, and feel helpless. Strong emotions caused by the event create changes in the brain that may result in PTSD.
Most people who go through a traumatic event have some symptoms at the beginning. Yet only some will develop PTSD....
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fiveandahalfminutes:
some days, I swear to god, it’s like my brain doesn’t even recognize the existence of amitriptyline (and you know how awake I am if I can spell that right first go even after taking it for six months). I took tonight’s dose three hours ago, and I am still wide awake (and yes, I did try to sleep, and yes, I spent an hour lying in bed not-sleeping in the dark getting more and...
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How do you cope?
little-bearr:
How do you cope with lupus? How do you accept the fact that for the rest of your life you are going to have to plan everything around your lupus? Take pills for the rest of your life, deal with pain forever, never knowing what is going to happen next, live in the moment? Because I cant wrap my head around it. I’m not a ‘live in the moment’ kind of person. I have always, for as long...
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Stupid Multiple Sclerosis.
4lwaysand4ever:
I’m feeling so weak right now… Too much stress, I hurt people I never wanted to hurt and I am so tired, I have the feeling my legs can’t support me anymore.
*hugs* wish I didn’t understand as well as I think i do.
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Pain journal thingy: vicious fucking cycle
dendrophile:
It’s been a long time since I’ve been this sick. I had a cold, which turned into bronchitis even though I was on an antibiotic. So they gave me another antibiotic and prednisone. But then….it got worse. I went to my doc a couple days ago. She gave me a prescription for an inhaler and a steroid shot on top of the steroids I’m taking by mouth. She said that she was doing all she could...
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fibromyalgiatakesmeaway:
Is it worth having a really nice day even if the pain then is totally unbereable?
Questions I wish I knew the answer to.. (above)
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sleepsabotage thing #gamillion
burningweird:
Even if I obtain sleep in a correct amount at a correct time of day, it doesn’t stay that way because I lack the necessary stamina to hold a normal person schedule of awake.
Especially if i try to use my being awake in productivetime hours for productive things.
Give me your delicious energies internet and I will… um… draw you shit or something. Or sing you a song. Or color...
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"...But You Don't Look Sick"
showgrins:
When suffering from an invisible chronic illnesses, the phrase, “But you don’t look sick,” is often lurking in the shadows. Due to the restriction of chronic illness, we (the sickies) are constantly trying to explain our illness to others. Ultimately, this can turn into justifying our illness, which puts us on the defensive.
For me, I am constantly battling fatigue, itch, and muscle...
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How A Doctor Cured Her Terminal Illness Using Food... →
interesting and all.. but sometimes I get annoyed at the idea that “diet” or “meditation” or some particular herb will just cure me and if only I’d just do that everything would be fine. heh. bad news folks, lots of MS diets are out there and while sure the back of the book has testimonials and I’m totally happy for those people, its not the cure. I promise...
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Please Understand...
paradoxxed:
Please understand that being disabled/sick doesn’t mean I’m not still a human being. I have to spend most of my day being very careful what I do, and if you visit I might not seem like much fun to be with, but I’m still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I’d still like to hear you talk about yours too.
...
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Had my first MS injection and it went okay!
cottonkittycandy:
Got a half injection of Avonex (a half injection to reduce the side effects) and took painkillers during it, so that I wont get headaches. My MS nurse suggested it that way. I felt okay afterwards. 15 minutes later I started to feel a bit dizzy and my leg started to feel heavy and stiff. On our way home my head felt weird, like I was having a flu or something and I became...
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"Does the body rule the mind or does the mind rule...
ilovethethought:
so… i just got back from the dentist. my first trip to the dentist since i have been off of lexapro. i suppose i forgot that i used to need a xanax when i went to the dentist before i was on the lexapro. in my defense, i thought that i was only getting a cleaning! low and behold, here comes the novocaine and the drill… ouch… more novocaine, drill… ouch…more novocaine! I was...
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I've been doing a lot of studying on multiple...
And your last line is exactly what I love about my friends. We call it parking VIP!
beaky-peartree:
…considering I most likely have it. We’ll know for sure in two weeks. The thing about MS is that it can attack any part of the brain, so the symptoms vary widely. It’s different with every person. I feel like I’m on a game show and I’m spinning a wheel to see what life affliction I’ll have.
One...
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Illness Pictures
This is brilliant!
lifewithautoimmune:
Selena, at Chronic Babe, shares her chronic illness story through a visual web:
Whatever your reaction to my picture, that’s okay with me because it isn’t about comparing myself to others. It’s about a new way of telling my story that I am exploring. Overall, I am both surprised and humbled by the impact my illness picture is having on me. I also...
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really?!
HATE THIS!
yeah, lady, what? your car broke down? you need to go to work? Well no mechanics are taking new cars.. so good luck. We’d put you on a list but it’ll be at least 2 months.. what? you have to work? you have bills to pay? Sorry.
now lets pretend that car you need fixed is broken because it ran you over and stopped right on top of you. Now wait a few months for 911 too....
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When doctors don't believe you. (my response)
Too many of us can relate to this. Thank you for sharing your story.
Its one of the things I’m most passionate about, and in some way prompted my starting this blog. We all know doctors are just people like the rest of us, but relegating us to the “its all in your head” file (which SHOULD NOT EXIST TO BEGIN WITH as our bodies and minds are connected) under the general assumption that the patient...
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When doctors don't believe you.
thank you for sharing your story. I’m so sorry this happened the way it did. Your post is so poignant that I want to post it before I go on a long rant about this. It makes me so mad. *hugs to you*
agirlwithguts:
“It’s all in your head.”
Today I am in really bad pain. The kind of pain that almost brinks on panic…if this gets even a tad bit worse I might end up in the emergency room....
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"I'll Pray for You."
omnomnomdiagnosis:
asd;lkfja;lksd
No.
Please don’t say that. Nothing sounds more patronizing than “I’ll pray for you.” It does nothing. It doesn’t make me feel better. It’s the lazy man’s answer.
Look, I’m an atheist. If you don’t know, fine, then I’ll say something like “Thank you, but please don’t. I’m an atheist.”
This is not to say that I don’t respect other people’s religions. I...
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Judge Away...
but I still think its unfair to have to deal with Colds and stomach flus etc when you have a debilitating chronic illness that you have to deal with on a daily basis.
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andrew-mcmannequin:
(This post is probably going to make me sound bitchy and insensitive. But really, I don’t care. I know people have good intentions, but it’s pissing me off.)
I can’t fucking stand it when someone asks me about my health problems (or even someone who has already known about them for a long time) and they give me advice that I really don’t want. ESPECIALLY someone who’s never...
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theclassiestass:
what is motivation
where can i download it
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All hugs and no kisses
pamelasutherland:
They call it an ‘MS Hug’, I understand why but such a nice name to belong to something that is so annoying and uncomfortable is just wrong. It sound so minor not to bother about, I mean what’s the worst a hug can be. At it’s worse, on a couple of times I thought that I was having a heat attack, I realised I wasn’t when, well when I didn’t die and it let go as suddenly as it...
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whiiiiiiiiiiine
My head hurts!
(you know.. on top of all the “usual” crazy unexplainable MS malfunctioning my bodies been doing lately).
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Donate $5 or more and I'll cycle 180 miles this... →
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Multiple Sclerosis
fuckthedisabled:
Sex and Multiple Sclerosis
The vast majority of people with MS experience changes in their sex life. The reasons for these changes are not just physical – you may feel worried about yourself, your MS or your relationship, which may be spoiling your pleasure. This leaflet outlines some of the problems people with MS tend to encounter, and some strategies to get around them.
Sex...
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I know being chronically ill makes a person...
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Hmph.
systemplayground:
I’ve been stronger than my pain all along. That was never my problem. Here’s the question I’d like to ask now:
How do you become stronger than your fatigue?
This is the ultimate question, in my opinion. Meds help, sorta. You push yourself, then you pay for it for days. Maybe being stronger than fatigue is letting it be a give and take of difficult decisions, sacrifices, and...
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Thanks MS.
lately I’ve found myself standing in a room and staring for 10 minutes trying to figure out what I was trying to do, or what I need to do this week.. then I give up. Sit, have a thought, repeat. ugh.
delinquentdoll:
I completely spaced having to mail a box tomorrow, so now it’s 3.22 AM and I’m down at the shop packing up a box. FML. Apparently memory loss is also a cool fun new thing I...
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Tired, ankles are sore and I'm grumpy :s
mymsdiary:
So, yeah… my winter boots finally died. The good ones, comfortable with good ankle support. I knew it was going to happen soon. They were getting more and more dilapidated.. but they were so comfortable I kept wearing them wherever I could. That’s not bad though, I think I managed to get 3 years out of this particular pair. I have had pairs not last 3 months before, so 3 years is...
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Has anyone else on Tysabri...
started having really vivid dreams/nightmares? I have had the most vivid nightmares for the last month or so and the only thing that I can think of thats causing it (other than general crazy) is the Tysabri and/or Tysabri and some of my psych meds interacting. I am off the ambien so I know its not that. I know my psychiatrist has no clue about MS or any of the meds I’m taking and...
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This Valentine's Day, Love Yourself More
chroniccurve:
I don’t care much about Valentine’s day. It makes no difference to me whether or not I’m in a relationship with another person when the 14th rolls around because no matter who I am with, where I am, what day it is, or what I’m doing, the most important relationship I have is with myself.
It took an indescribable amount of loss and heartbreak for me to learn...
