January 2012
84 posts
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owly asked: Can you link to the source / study...
chroniccurve:
Absolutely. This post from RA Warrior details the comparison, and these two sources from the Center for Disease Control are how the fact was derived. To sum it up for you from the ‘97 CDC mortality reports, RA accounted for 22% of all deaths due to arthritis and other rheumatic conditions, Lupus accounted for 14.5%. As of 2006, mortality rates for Lupus has decreased, so that’s...
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I'm selfish enough to tend to my problems first....
signsofmelody:
I didn’t mean for every entry in this blog to be about me and my journey with RA. Before I cut back on writing long hand, my journey entries were about my dreams, meditation, things I was learning about the environment and herbs, women. I was writing poetry that made me smile and laugh. I had more material to feed off from others I was interacting with.
Now when I sit and think...
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I just want to feel ok again.
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Great Resource for Mood Disorders and Anxiety
ilostmy30s:
Article reblogged from www.psychcentral.com. Written by Erika Krull, MS, LMHP
Today I stumbled upon a terrific resource on mood disorders and anxiety. I was so enthralled as I checked out all the different areas, and I kept saying to myself, “I have to put this up on the blog!” So here it is and some of my comments about it.
www.psycheducation.org
First, this is written by a...
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Drs. ignoring you... it's not just for the...
backali:
My husband had his MRI on his lower back. An x-ray showed a fractured disc and spinal bifida occolta. The Dr SAID he was going to have an MRI to see where to go from there and what was going on with his sbo. My husband wasn’t allowed to walk in the door without first shelling out over $500. So we have been living on very little food and no fun these last 2 Weeks. He went to the follow...
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Pity Parties.
fuckthedisabled:
A very basic and common assumption is that pity plays a critical role in partnerships where at least one of participants is disabled. The association of pity and disability is encouraged by the stigma of disabled persons of desperate, depraved, and unable to maintain any semblance of independence in feeling or action. In reality, the treatment of anyone as an object of pity...
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shift.ms : a social media space for people... →
mymsjourney:
another place for people to connect on the interweb…. it seems like a positive and fairly cool site….
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Heal Kick - Social Networking Site For Chronic... →
littledip:
where-she-went:
wouldyouliketoseemymask:
lecorbeau:
handsagainsthearts:
supersoygrrrl:
modernistwitch:
nuestrahermana:
I just found this and it is awesome! Honestly, I am so grateful someone made something like this.
If you want to add me on there just send me a message & i’ll message you my username!
Also, please re-blog because this can be extremely helpful to so...
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Its been a while...
but I had a seizure tonight. Not sure if Its over doing it with the cleaning, or just a build up of several months of stress and what not. I wasn’t even sure it happened. I’ve had both partial seizures and full on Tonic-clonic seizures throughout my time with illness.. but it was clearly a partial seizure. I didn’t even realize it happened. I sorta lost time.. felt really out of...
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I feel like shit and I'm pissed off about it.
pepperminteyecandy:
Fuck my immune system for being retarded and attacking itself. I’ve rested for two days so that I could do things this weekend but I wake up this morning feeling average and with major fatigue and leg pain. Now I feel like I have to choose to go to my friends birthday today or crash and burn before watching roller derby Saturday and feeling like the rest of my weekend/time...
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I HAVE A DIAGNOSIS
thecosmosknowsitself:
I HAVE A DIAGNOSIS YOU GUUUUYS
Seven years after initial systems, I have been diagnosed with Fibromyalgia.
This is exciting because I HAVE A DIAGNOSIS AND NOW WE CAN START A COMPREHENSIVE TREATMENT PLAN WITHOUT WORRYING ABOUT FUCKING STUFF UP.
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jayneysgotagun:
i need to start to make daily routines. since i am going to be stuck home until the middle of February, pretty much house bound. at the moment i have just been going with the flow , which results in me not getting dressed or eating or doing any normal day to day things. so i need to try and sort out some sort of simple routine to keep me in reality and not my own world.
story...
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i-wanna-know-how-it-feels:
Went to bed “early” for me. Still wake up the same damn time. what? Fuck. I missed what I wanted to go to today and I’m crushed despite the fact it would have probably just made me really, really sick. Still… Sometimes I just want to get to do things and have some sort of life even if it hurts like Hell. Because it hurts more not to.
This was my damn day. ugh. even...
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murderoticax:
I hate when people tell me how lucky I am that I get to sleep till 1pm and they have to work ALL day. It’s a bit rude, I can’t work right now and I don’t go to bed till almost 5 am every night and I still don’t sleep sound. I’m also sick today so how in the world does that make me lucky? Trust me I’d rather be working my 8 hour shifts than be sleeping.
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State of the Union...
I have been tweeting commentary this whole time.. but this hit me hard.. “this nation is great because we have each others backs“…
yeah? Well look at US, LOOK AT ALL THE SICK, CHRONICALLY ILL PEOPLE IN OUR NATION, WHO HAS OUR BACK?!?!
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Dream Man
thenewsensation:
I want someone to carry me to bed when I fall asleep on the couch.
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Dear MTV, I understand your stance on teen...
teachmehowtocourtney:
Just saying.
Seriously! my god. full on 24/7 reality tv.
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posts....
mymsjourney:
I have been really healthy for a while now, and haven’t really been posting much…. This blog will still be the place i rant and vent about my health…. but i think i’m going to start sharing some of the things that make me…. well me. comedy, music, artsy stuff…
Awesome that you’ve been healthy and you have awesome taste in comedy music and artsy stuff so Im excited for that...
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So I'm not taking back...
my statement about hitting rock bottom. Its there. Its real. BUT… I think I’m starting to reach the point where I have to understand that while the depression is real, the physical symptoms are still MS. I mean, there is no real reason for me to assume otherwise.. since I’ve been experiencing this for ever now.. but when you realize you’re depressed or unhappy or dealing...
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The impact of chronic illness on a family.
thisisjeanniemarie:
I was diagnosed with Ulcerative Colitis when I was 15 years old. It was Easter Sunday morning, many years ago. I woke up with horrific abdominal pain and noticed I was lying in blood. I was scared out of my mind! My parents had no idea what was happening to me! Neither did my two brothers (who were 14 and 10 at the time.) I was in more pain than I’d ever known!! My parents...
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I'm watching the movie "Funny People"...
and I’m not sure if the illness part is the depressing part or the fact that I miss hanging out with comedians. Also the movie has only been on for 5 minutes so either assumption is probably wrong. The likelyhood that I get bored or the movie becomes too personally depressing (meaning that its about people that are SUCCESSFUL before their illnesses) that I’ll change the channel and be...
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In my head I'm going to make a beautiful meal..
fughawzi:
In reality, I just end up with two pounds of clementines and some vodka.
this is like when I decide I’m going to cook something.. I go to the grocery store and by the time I return I’m so exhausted I end up eating stale crackers and making myself a gin and tonic which I generally find on the table in the morning after falling into a restless sleep before I even take a...
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My eye is better today. It might have been a one...
dreamysaturn:
or maybe it won’t flare up 100% until my parents go to Vegas, leaving me unable to go to the hospital myself.
watch it happen. It will. My luck sucks. :|
I’m sure this isn’t all that helpful.. but once I had a serious ‘bout of Optic Neuritis the blurred vision would come back at the end of the day or when I got too hot or was extra fatigued even without a flare...
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So its reasonably clear (the long edition)
that I’m hitting one of those rock bottom moments / depressed/ reached complete exhaustion
Awareness of yourself reaching that point isn’t as noticeable/ easily warded off, when you’re desperately working to maintain health care and/or find financial assistance, housing, survival tools, and all while processing the symptoms and diagnosis of a chronic illness…
When your...
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More Than Coffee →
mynewnormals:
I may walk a little slower but I’m still me.
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Are we really only given as much as we can handle?
ilostmy30s:
Today a sweet lady and I were standing next to one another in a mini market. I look really bad today and I was having trouble digging quarters out of my messy purse…and when some stuff fell out of my purse I sighed a very loud, long sigh. As she walked out the door, she looked over her shoulder and said “God never gives us more than we can handle”.
This woman is lovely - to...
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I must not let Multiple Sclerosis defines me.
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This country is so fucked up.
forbiddenlovez:
I don’t even fucking care if the government or what ever the fuck it is comes after me. This is so messed up. If someone is deathly ill with a diseases like Cancer, Multiple Sclerosis, etc, why the fuck wouldn’t you give them the health insurance they need? At the very fucking least a nurse to come help them out?! Even once, twice a week to help give their families the peace of...
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Its reasonably clear
meant to send this to Chronically Something..
positivethinkingforlosers:
that I’m hitting one of those rock bottom moments / I’ve reached complete exhaustion.. lots of comments on what that means for me heh.. but here’s the first statement of acceptance for whatever its worth.
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listen to your body... MS and Cleaning
ilovethethought:
So were are having some guests over for dinner tonight… our house is not a mess, but i figured that it could use a bit of straightening up. however, i have not even gotten to sweeping the floors or wiping down the dining room table and i am exhausted. i really didn’t do much except clean the sink, load the dishwasher, and locate some lovely smelling candles… the fatigue that MS...
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My doctor put me back on prednisone
F#(*$()$ steroids. can’t live with em (or fit in your clothes/interact with other humans) but can’t live without em.
wisheezy:
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HHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH
HHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!
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