May 2011
21 posts
Perhaps
both of you deserve better than that… wish I could send you the most positive thoughts ever.. but I am thinking of both of you and sending you any strength I have in the reserve.
verifythis:
The reason I can’t sleep is I am afraid I won’t wake up. Got some shit results today, and I am not ready to face this next chapter.
My kids deserve a healthy mom.
2 tags
Not to be a bitch or anything but...
not to be a bitch or anything, and I’m all for raising a ton of money so that I can stop injecting myself with this crap… , but anyone else had their entire career suspend by MS but not disabled enough to get disability (at least not till after multiple appeals which will likely be 6 years from now)? I’m wondering when I can raise money so I can get a place to live that...
9 tags
MSAA Releases My MS Manager for mobile devices →
Allows you to store medical info, keep a exacerbation log, daily journal of overall symptoms, pain etc, and sync with an online version. Seems pretty interesting. I personally use i Inject and Pain journal but this has lots of potential. Check it out. Its free.
5 tags
thatsafakelaughbytheway-deactiv asked: I am recently off Rebif too. Worst period of my life. I am getting tested next week to go on the new MS pill!! WOO HOO! My sister in law went on it and LOVES it! I developed severe needle anxiety and would freak out three times per week on Rebif. I had my husband start injecting me, then I started dodging him too. Just wanted you to know...I understand what you are going through. (((hugs)))
9 tags
Holy Oww
I have such a horrible time when my copaxone injection is in my leg, especially the thigh. I mean, it always hurts but this is like a little atom bomb in my leg that proceeds to send electric shocks up and down that side of my body for days after. I steel myself for it before but every time it kicks my ass a little more. I know I should be thrilled I’m no longer on Rebif (which had me...
3 tags
6 tags
crappy coping mechanisms - # 2
I don’t seem to be alone in this one either. Its an easy fix for anyone with the USA network or the Internet. This show has been on for so damn long that you’ve got plenty of episodes to fill those “laying on the couch in physical or mental pain staring at the TV” days. There’s at least one marathon on USA a week (more like two or three) and after a while all the...
8 tags
Crappy Coping Mechanisms - # 1
mostlyokay:
I’ve started drinking again after about 6 years of being almost completely straight-edge. This is a totally boring and predictable one though.
This one is on my list too. Gin and I are really good friends these days.
10 tags
Crappy Coping Mechanisms for the Inevitable...
Intro!
So I’ve been working on a post for a while now, I’ve been writing it in rap form (set to the fresh prince of belair theme), but I seemed to have lost my sense of humor this week. So while that’s on the back burner I thought I’d start a list of the things I do to cheer myself up, wallow in self pity, or ya know.. crappy coping mechanisms for the inevitable lengthy...
3 tags
Tumble This: Catching Up →
verifythis:
Health wise I have been in the shitter lately. I have had so many tests done and still a shit ton more scheduled, I almost need a personal assistant to keep me on track.
My insurance situation is a complete nightmare, so any energy I have has been focused on that uphill battle.
I’m sorry-I miss…
4 tags
Mostly Okay: The hardest part... →
mostlyokay:
To be honest I think the most difficult part of being diagnosed with MS is what it’s doing to the people around me.
It’s so hard because what I want the most is just a steady level of support, but everyone is reacting differently and I have to constantly bear in mind that they are coping in their…
7 tags
Dear Control Freak
One of the hardest things to learn to live with when diagnosed with a chronic illness is the unavoidable need to rely on others. Friends, family, doctors, insurance companies, you are inevitably at the whim of others. In many ways it can be positive. You learn to trust, to accept, and to communicate (that last one has yet to happen in my case). When it comes to doctors and insurance companies you...
