Stuff Sick People Have to Put Up With:... →
stuffsickpeoplehavetoputupwith: minervasmilk replied to your link: “Virus and low sunlight ‘raises multiple sclerosis risk’” I had mono when I was 17, chicken pox when I was 8 and I was diagnosed with M.S just now at 32. However I’m from sunny Arizona, born and raised! So I am sure I received plenty of Vitamin D….
minervasmilk: I can barely keep my eyes open. I must admit depression is slowly creeping up on me today. I was late to work by 30 minutes, again. I am just so tired. I sometimes think to myself, “Why am I putting myself through this? I don’t care for my job.” I made more money when I was 16, but I can’t make too much money in order to keep my health insurance. It’s pathetic. Actually it’s making...
Can you truly love someone who's sick?
afflictionseclipsed: As hard as it can be to love someone- it has to be harder to love a sick person. I feel like every movie I have seen latley just highlights how tough it is to care for someone who has medical trouble I see that enough. I can honestly say one of the worst parts about having MS is seeig how it effects my loved ones. I know it’s not my fault, and that it’s something I have no...
Personal Hell #5265262: Uhthoff's Phenomenon
This is the best description I’ve ever heard. An all-over, full-body puke-a-thon. EXACTLY. stuffsickpeoplehavetoputupwith: I fucking hate when it starts to get warmer outside. Words cannot express how much sicker this makes me feel. My arms and legs feel like vomiting today. I realize that’s a very synasthaesic description, but that’s how it feels. Like an all-over, full-body...
Stuff Sick People Have to Put Up With: The hardest... →
stuffsickpeoplehavetoputupwith: …to me, is the way that it can isolate a person. As I’ve alluded to in a previous post, I work a lot. So maybe you think I’m one of those rare people with such mild MS that it doesn’t really affect my life at all. Wrong. It does, and I have to choose. By “choose,” I mean choose between…
Empathic Realities: I don't know even what to say... →
empathicrealities: I keep getting this vague kind of feeling that something isn’t right, but I can’t put my finger on it, and I don’t want to do another bounce hospitals for three months thing. my kids have dealt with enough they just need their mother home with them..I coudn’t get to the doctor today, because I…
A Chat About Lupus With a Friend..... (Warning...
Him: Hey Sonya how you doing??
(Friend looks at my walking cane and frowns....)
HIM: I see not so well....
Sonya: Yeah....Lupus is beating me up pretty badly....
(He scratches his head in confusion)
HIM: I don't understand...my sister in law has it and she's fine. She gets a little achy here
and there but that's about it.
Sonya: **blank stare**
HIM: My Aunt has it and she just started an aerobics class the other day. She's doing fantastic!
Sonya **starts playing with a random strand of hair**
HIM: I just don't understand what's WRONG WITH YOU?
Sonya **Walks away**
So because the members of your family have Lupus and are fucking fantastic, does that mean I'm supposed to be?
No two people with Lupus will EVER be the freaking same! Hell I can't even look at other people doing aerobics without me falling to the ground. I'm sorry but I don't know why your sister in law is just "fine". I don't know why your Aunt is able to start an aerobics class.
Maybe she tells you she's just "fine" like the millions of other chronically ill people out there because most of us know you REALLY don't want to know what's going on. You really don't want to know the excruciating day to day details of what its like to live with Lupus or any other chronic illness.
No you just can't wrap your mind around that. You just pop an Advil and a fifteen minute nap and you're fine! Your answer to everything is eat right and exercise and Lupus should never kill you.
Hey maybe you've got a point there! **Throws prednisone and Plaquenil out the window**
Got inflammation fellow lupies? Just eat a healthy salad! What the hell...add some croutons for extra flavor!
Lupus nephritis getting you down in the dumps? Try yoga! Those kidneys haven't been stretched in years I bet!
Pleurisy has you working hard to catch your breath? Take your best gal pals out and have a spa day!
Maybe I'm going over board but I did label this a rant. But that really burned my cookies this afternoon....