January 2012
84 posts
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December 2011
64 posts
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Blow stuff up.
This is AWESOME.
see ya 2011! HAPPY NEW YEAR EVERYONE! BOOM!
wonkypillow:
Totally therapeutic. Merry Xmas everybody!
http://www.devastatingexplosions.com/
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Ain't no party like a chronically-something...
I know you’re all wondering what this crazy girl is doing on the last friday night of 2011. This shitty year is about to end so I should spend the last full night of it in a way that sums up the whole year, right? right.
Well, I don’t want you all to be too jealous but… I’m so on it. Currently I’m sitting on my couch watching SNL’s best of Jimmy Fallon...
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like your head can never reach the surface no...
yuryuri:
I’m really tired of living pay check to pay check. Scraping barely by. And having absolutely nothing.
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phrases that I hear all the time, which drive me...
karinawilson:
these are phrases that I hear all the time because of my illness, I don’t want to hear any of these, just because you don’t fucking get it!
1. It’s all in your head.
2. At least it’s not fatal.
3. You’re just using it as an excuse not to do this/that.
4. Mind over matter
5. Can’t you just take some medicine?
6. You’re too young to have all these...
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ilovethethought asked: I just read your Tysabri Infusion #1 post... I have been on tysabri for a couple of years now, and it really can be an amazing treatment for many people suffering from MS. I was so scared when hearing about PML at first as well. But now I am so glad that it did not effect my decision to begin Tysabri. My skin turned green-ish after my first infusion, and of course I freaked! but as time went on...
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1 week left of 2011.
Don’t let 2012 hit you on the ass on your way out! later crappy year!
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To All Chronically Awesome Ladies (Or men too!)
bryst:
I am making an art installation about my experience with Interstitial Cystitis pain. You may have seen the prototype on my Vimeo, but it’s going to be a little different than that. Basically the idea is that I am making stuffed animals (well, blob animals) out of fabrics that I wear/surround myself with during flares, and they will make sounds that express discomfort when touched/handled...
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christmas Q & A with chronically-something
Q - hey!! what did you have for christmas dinner?
A- baclofen baybee
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I slept through christmas...
yep. Been awake for probably 8 hours in the last 36. everything hurts but I’m thinking I don’t mind sleeping through this holiday so much. never been a favorite. Probably should be glad I am too sick to do my usual brooding about loneliness, family, etc. I’m much more fond of new years eve (and the idea of kicking 2011 out the door) so I’m hoping I can actually recover...
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ah the holidays. heh
pretty-little-kitten:
I always feel weird when people I haven’t seen in a long time not only ask “how are you?” but also “have you been sick lately?”
Yes, my fellow comrades, yes I have.
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All I want for Christmas is a body that functions...
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The Blue Light Project
invisiblyill:
Hi guys, I’ve just finished setting up an invisible illness photo project and am hoping to start the ball rolling- would anyone be interested in participating?
http://thebluelightproject.tumblr.com
The concept is pretty simple: take a photo of a lamp etc. in a darkened room shining on any item(s) that mean something to you/your journey with invisible illness. (instructions are...
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Wine May Help Ease Multiple Sclerosis Symptoms →
In the Belgian research, to be published in an upcoming issue of the European Journal of Neurology, the team examined potential lifestyle choices that could be associated with MS. They examined 1,431 people with either type of MS and compared their symptoms to habits of consumption.
The researchers found that relapse MS sufferers who drank wine seemed to enjoy an observable “protective...
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One thing I hate about my MS? The fact that...
:::sneeze::: me too
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A virtual fist bump to you all
M.I.A. again. yeah, sorry about that. Lots going on and paying for the last month (and wedding week especially) with fatigue, pain, and general ugh-ness. I will be back online whining, babbling, and responding to asks (which I’m so grateful for btw.. I love hearing from others) asap. Not that you all are waiting on bated breath or anything. Just want to make sure I respond to everyone thats...
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Tysabri infusion #1
First Tysabri infusion thursday went reasonably well. No reactions during or anything eventful really. The nurses kept saying things like “aww are you here alone?” as though that meant I was a hermit with no friends/family (which I sorta am but let me keep my illusions damnit). By the time I got home, however, I was feeling pretty shitty. Started sneezing, having hot flashes,...
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lovelyplastek asked: Hi :3 I know who this is,...
positivethinkingforlosers:
Whoa someone reads this!! ::insertexciteddance::: Hi! I’m not at all put off by your posts. In fact, I find your honesty, self awareness and self assessment to be refreshing and amazingly cogent. You answer your asks in a way that includes pieces of yourself as well as a logical knowledge base I’m assuming you’ve acquired through life and reading. These are the people...
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Fibromyalgia Facts
tristatepain:
Because fibromyalgia is a fairly new diagnosis in the realm of medicine, there is still a lot of noise surrounding the disease. At the TriState Pain Institute, Dr. Benjamin Venger is dedicated to serving those with fibromyalgia in the Fort Mohave, Arizona and Henderson, Nevada areas. Dr. Venger is educated and experienced in the treatment and education of fibromyalgia, and strongly...
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Not only do people not understand, sometimes they...
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wholegrainlofat asked: Your brain avatar looks like a turtle. Also, you are amazing and you smell like unicorns.
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Does the body rule the mind or does the mind rule...
The smiths. Nobody said it better. /endmostlyunrelatedtoblogtopicpost
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10 Things People with Chronic Illness and Pain...
So someone sent me this and I thought it had some pretty great points. So I’m sharing it with you all.
10 Things People with Chronic Illness and Pain Need to Know by Maggie Laura McReynolds
1. Your physical condition does not define who you are. As all-consuming as dealing with physical limitations can be, you are more than the things you can or can’t do. You are your ability to...
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hugs. I am feeling this right now.
mystery-spot:
I did way too much this weekend ..
Now this morning I’m exhausted, everything is all “pins and needles” feeling and I just want to stay at home and cry.
But I can’t because I have work. Ugh someone kill me.
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Well good news :) Tysabri is working :D
YAY! Congrats! I have my first infusion this thursday. I’m pretty nervous but I have high hopes.
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Dear tumblr...
comfortablyobsessed:
Dear tumblr, While this will probably go unread, I feel the need to post it anyway. If I can just express some of these feelings, maybe they’ll go away, and maybe I will feel better. So here it is: Im miserable. My misery doesn’t stem from some small injustice or petty problem, Hell I wish it did. No, tumblr, Im miserable because Im alone. There is no one who I can call...
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copaxone why are you such a dick
iloveyoulikesilencedoes:
stop making me bleed like that
it isn’t nice
I like to reprimand my medication too.
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Another Life Lesson Brought to you by Chronic...
This has always been my greatest fear. I’ve always been terrible at asking for help and accepting help when its offered. Independence has been ingrained in me since childhood. I have always been a “do it yourself or it won’t get done” kinda person. These days its as though I have something to prove, a fight against what I see as the inevitable. I think maybe this is another...
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Life Lessons: We do it to ourselves
So I’ve come to realize, through this wedding experiences that its really my own neuroses that stop me from taking care of myself. Friends in these sorts of situations, the ones that really care, even if they can’t see now… they will not resent you in the end for doing what you need to do. The real problem is when you are not capable of stopping when you know you need to. The ability...
