May 2013
22 posts
7 tags
lyndez:
Okay can I start directing posts at the MS community on tumblr???
When you guys are having a flare up, do you ever wish you were a towel someone could shake dry?
I am so tired. But this restless fucking body just wants to spaz out.
I wish I were a towel.
Thats a perfect description of it really. Shake me dry or knock me out. When the symptoms of flares stay forever after till the...
6 tags
5 tags
8 tags
8 tags
I'm getting increasingly tired of the words "in...
petticoatruler:
Using mice (which don’t get MS the way humans do - the only thing they get is an induced autoimmune response, and without knowing the base cause(s) of MS that’s stupid) is like trying to figure out human anatomy based on a kid’s rubber baby doll.
Agreed! And I’m also getting tired of reading “was found to be XX% effective in comparison to a placebo” and never...
fogblogging:
If I had a dollar for every time someone told me to “just push through it” I’d probably have enough money to buy a giant cheese grater to push them through.
4 tags
been in transit for 9 hours now and my muscles are...
and I think it scares the flight attendant a lot.
7 tags
6 tags
9 tags
Dear Florida: (where I give my home state a stern...
We’ve never really gotten along despite spending the first 18 years of my life with you. While I love your citrus, the clear sky, and the turtles and tortoises you house, its just never been enough to win me over. I mean, you always had to make sure the snakes were in my front yard, the mosquitos liked my blood the most, and the roaches were not just big but could also fly. then you’re...
Dealing with insurance is never easy! Especially...
8 tags
8 tags
7 tags
the truth
If only this were included in the “understanding disability needs and accommodations” seminar I pretend all airline employees are required to take.
flaresof-fibro:
What Dr’s think our tender areas are:
What it is really like living in pain:
6 tags
5 tags
1 tag
thoughts or something like it: hollysleeps:... →
hollysleeps:
alittleanonymityplease:
The only people who understand how hard it is to be young, and chronically ill, are YOUNG AND CHRONICALLY ILL. Older middle-aged people who become ill, have experienced life. They have experienced their prime. They have had the opportunity to…
4 tags
5 tags
7 tags
me on vicodin
Or me almost every day. heh.
fibromyalgiaproblems:
April 2013
35 posts
3 tags
7 tags
7 tags
There are many questions I have for you all...
like if anyone else on copaxone finds that they no longer absorb the injection well and leak medication despite needle depth… or how I should take the continued “you’re extra flexible and you just adjusted wrong again” statement with no advice/response about how to fix them or lessen the pain?
yes, these are things I would really love feedback on and plan to write about...
4 tags
peppermint3y3candy:
Starting to plan moving forward is actually really scary because to even beginning to think about that means having to acknowledge the inexplicably shit place I’m in now mentally, and the fact that I have a chronic illness and it’s never getting better than this, only (presumably) worse.
It’s a mouthful of diagnoses, big words and even more complicated explanations, and even...
7 tags
4 tags
8 tags
8 tags
6 tags
When you say nothing at all: Living with an... →
inspirecommunity:
From the Stanford Scope medical blog
Imagine you’re a busy specialist, preparing to meet a new patient in your office…
You note that your patient only slightly smiles and seems a bit distant. Many of your patients come in with three backpacks full of medical records, yet she has nothing. If this patient is so ill, where are all her labs and tests? You note that she’s watching...
5 tags
3 tags
Help?
joellesolo:
What do I need to take to the hospital?
I know it’ll be a long stay, but… I don’t know. I don’t think I’ll even be allowed to wear pjs. I’ve got my computer and my kindle on the list, as well as necessities like a toothbrush and all that bathroom stuff, but…
I’m just wondering if there is anything I need to know to take with me. A hospital survival kit, ha, I guess.
Also, I’m...
4 tags
5 tags
5 tags
Guess my Copaxone package won't be delivered today
also, I could use a nap
7 tags
6 tags
My hips are KILLING ME
its been this way for over a week and getting worse. UGH. This has never been one of my usual flare-ish pain location. Meds aren’t helping, It hurts to sit, stand, lay down. I think my attempts to compensate when walking/etc is making my usual upper back pain worse too (and all the usual pain crap). Its exacerbating the fatigue but laying down hurts so I dunno what to do.
WAHH. :( Just...
6 tags
5 tags
sometimes my symptoms terrify me
7 tags
magnumoctopus:
I feel like there is such a fine line between helping and hurting with those posters or posts that compare mental illnesses to physical illnesses.
It just kinda turns out that a lot of my friends have chronic illnesses, mental and physical and sometimes both.
I just feel like there’s a lot of erasure going on in those posts.
A friend of mine has cancer, he was fired for going...
7 tags
Someone you know ill? How not to say the wrong...
stophatingyourbody:
wheeliewifee:
When Susan had breast cancer, we heard a lot of lame remarks, but our favorite came from one of Susan’s colleagues. She wanted, she needed, to visit Susan after the surgery, but Susan didn’t feel like having visitors, and she said so. Her colleague’s response? “This isn’t just about you.”
“It’s not?” Susan wondered. “My breast cancer is not about me? It’s...
7 tags
assiest:
‘you have acute hepatitis’
no you have a cute hepatitis *winks at doctor*
8 tags
another-reckless-being:
being chronically ill sucks i mean 0/10 do not recommend
Its true. Can’t even find one of those fake dentists to pay to say they recommend it.
6 tags
Reblog if you have a chronic illness. Whether it...
::raiseshand::
8 tags
ticticboom:
So I had a good day yesterday. Managed to go out for the day with my mum and look around some shops. And managed to go out last night with friends and didn’t get back til 3am. But now I’ve slept terribly, my wrists and legs are in so much pain and I’m stuck in bed :(
Its never an even exchange. ugh.
8 tags
biotronika:
From now on, when people point to my spoon tattoo and ask, “What’s that?”, I’m going to start telling them it’s my gang affiliation.
