Chronically Something
Chronicles of Life with Multiple Sclerosis
Happy Crohn’s Disease Awareness Day! It’s okay, I know you meant to get me a card.
Welcome to the first installment of Sick Style. I made you a colorboard based on a few of the little friends that keep me going everyday, minus a monthly intravenous infusion that is quite transparent.
I’ll let you know when they come up with an Ankylosing Spondylitis Awareness Day. Until then, I’m taking colorboard requests. Let’s chalk it up to art therapy. Visualize autoimmune disease.
Love,
Drew
When you have a chronic invisible disease, it’s so easy to lock yourself in a closet with your MonSter. He took your health. Don’t let him take your support system too.
hard truth
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat.Top text reads: “Sleep all day because of depression”
Bottom text reads: “Miss Insomnia”]
I don’t know about anyone else, but I kind of miss the days when I barely slept three hours a week.
I have PTSD, and I have a lot of nightmares(and I can’t wake up from them), spending so little time sleeping would kind of mean that I would spend less time in nightmare land.
I don’t even care about hallucinations from not sleeping, I get them anyway.](http://25.media.tumblr.com/tumblr_m3uurqIJzC1qi36g3o1_400.png)
[Image: 6-piece blue colored background with a Siamese cat.Top text reads: “Sleep all day because of depression”
Bottom text reads: “Miss Insomnia”]
I don’t know about anyone else, but I kind of miss the days when I barely slept three hours a week.
I have PTSD, and I have a lot of nightmares(and I can’t wake up from them), spending so little time sleeping would kind of mean that I would spend less time in nightmare land.
I don’t even care about hallucinations from not sleeping, I get them anyway.
(via lifewithautoimmune)
I was going to just skip my inject tonight.
But then I imagined Eunice giving me disapproving glares about it.
EUNICE HAS INVADED MY CONSCIENCE!
I hope she’s happy because this inject stung like hell too.
its so important to have someone whose disapproving glare exists in your mind even when they aren’t there.
(Source: egbertz)
An old friend has been in town for the last 2 days…
and it was tons of fun. Love reminiscing about things that don’t involve MS, discussing our mutual woes with aging, and life and thinking about all the ridiculous things we did years ago and things we wish we’d done in retrospect.. but now, at midnight on friday, I’m really excited to take my baclofen and go to bed. That makes me both sad, and glad I have understanding but not overly inquisitive old friends.
nobody wants the spanish inquisition :)
My brain is strange
One of the most frustrating things about MS for me has been the memory problems.
It is the strangest thing in the world to forget things you know, but only temporarily. For about three days (maybe longer?) I couldn’t remember the name of one of my former coworkers. We’d gone out to coffee together less than a week ago. I could picture every detail of his face, his voice, the things we talked about. I’ve known him for three years but I couldn’t remember his name. After days of struggling to recall on my own, I was about to go on Facebook to look his name up when suddenly I remembered it. Now I keep repeating it to myself over and over, paranoid I’ll forget again.
Sometimes I forget how to type. I am a computer professional so it’s kind of important. But once in a while I lose all the muscle memory associated with typing. I forget where all the letters are and just spew nonsense garbage if I’m at a keyboard.
Back Pain Info You Need to Know
Back Pain Info You Need to Know
The pain of it all, what do you know about back pain until you feel it yourself. You cannot truly know anything, yet according to statistics, the majority of people in the world suffer some degree of back pain. Some people go through pain. Yet, these people have never survived injuries. Yet others go through pain from injuries, and feel the worst. Ironically, however, injuries are not the only cause of back pain, rather few medical conditions, including multiple sclerosis can cause back pain. Learn more about the diseases that ache, the back. When considering back pain one must ask what its cause is. How can one control the pain? What self-care prevention strategies can one use to ease back pain? What treatments are available to me? Have this one at once!e. You are Worth It!
yep, and I always end all attempts to feel better with a giant cloud of icy hot that generally leaves me coughing/sneezing and makes zoya mad even when I’m in the other room. heh.
I reject disability shame, no matter how visible it becomes.
I think the notion that I should hide my disease or keep it a secret is totally fucked. How can being open about my having MS be a disadvantage? Anyone who is not willing to date/employ/befriend me because of it is not worth my time/effort/energy/love. I understand that it’s totally up to people as individuals to disclose, what I guess is, quite private information about themselves but I read a lot about people spending (quite valuable) energy trying to pass as perfectly-abled.
The more people know, the more people are understanding. I make a point of being open about my MS, hopefully I come across happy and willing to answer peoples questions. Lots of people don’t know about MS, and admittedly I didn’t either. Which is a total embarrassment because my Aunt is nursing home-bound at under 60 with (I can only assume is) secondary progressive MS.
So many people think that it is a muscle disease, or a problem with bones. The more that I can fill people in, so they have a greater understanding on how it is for me living with MS the more they understand when I can’t do the things they want me to (and usually that I want to too). It makes it easier for me and also makes them feel less like I’m ditching them or being a “bad” friend because I can’t always see them/leave early etc.
Anyhow, my point is, I’d love to see people be less embarrassed of their ailments (be them physical or mental). Knowledge is power and rather than running with people who are ignorant or discriminatory, find people who love you for all of you (even the broken/weird/special/diffrent bits) because I swear they are out there.
This rant inspired by…
About Me
Thoughts, ramblings, and unsolicited advice about life with Multiple Sclerosis / Chronic Illness, by me and other people on the internet.
Because sometimes it feels good to be able to say "oh man I can relate".
Ask Me Anything!
Follow @Not_Interesting
Positive Thinking For Losers
Tort Time: All Turtles and Tortoises all the time
What You'll Find In Here
Copyright © Theme created by 
